• The Encephalitis Podcast Ep 52 - Trevor: Lived Experience of HSV encephalitis
    May 28 2025

    In this episode, Prav talks to Trevor and his mum, Lois from Sydney. Trevor shares his lived experience of herpes simplex virus encephalitis.

    If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

    If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

    Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

    Follow Encephalitis International:

    Facebook: https://www.facebook.com/encephalitisinternational

    LinkedIn: https://www.linkedin.com/company/encephalitisinternational

    Instagram: https://www.instagram.com/encephalitisinternational

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    31 mins
  • The Encephalitis Podcast Ep 51 - Travel Health and Encephalitis with Katy Peters
    May 14 2025

    In this episode, Prav talks to Katy Peters about travel health and encephalitis. Katy is an immunisation and travel health specialist nurse who founded 360 Health Limited, a London vaccination clinic in 2013. A member of the Faculty of Travel Medicine at the Royal College of Physicians and Surgeons in Glasgow, where she qualified with with distinction and was awarded the Cameron Lockie Prize for Academic Excellence. Katy was previously chairwoman of the British Global Travel Health Association. And her career has taken her overseas with Médecins sans frontières following qualifying with distinction from the London School of Hygiene and Tropical Medicine. Katy is also Director of Riva Training Limited, an immunisation and travel health specialist training company, teaching for the Ministry of Defence and the NHS or the National Health Service.

    If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

    If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

    Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

    Follow Encephalitis International:

    Facebook: https://www.facebook.com/encephalitisinternational

    LinkedIn: https://www.linkedin.com/company/encephalitisinternational

    Instagram: https://www.instagram.com/encephalitisinternational

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    33 mins
  • The Encephalitis Podcast Ep 50 - Sue Ann: Lived Experience West Nile Virus Encephalitis
    Apr 26 2025

    In this episode, Prav talks to Sue Ann who was diagnosed with West Nile Virus encephalitis in 2023. She shares her lived experience story.

    If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

    If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

    Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

    Follow Encephalitis International:

    Facebook: https://www.facebook.com/encephalitisinternational

    LinkedIn: https://www.linkedin.com/company/encephalitisinternational

    Instagram: https://www.instagram.com/encephalitisinternational

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    25 mins
  • The Encephalitis Podcast Ep 49 - Leaving a Legacy: Wunmi's support for Encephalitis International
    Apr 22 2025

    In this special Legacy episode of the Encephalitis Podcast, Prav talks to our lived experience and community member Wunmi. Wunmi had encephalitis in 2017. Here, she shares her story and talks about legacies and leaving a gift in her will.

    To learn more about wills or leaving a legacy gift to Encephalitis International visit: https://www.encephalitis.info/gift-in-will/.

    This page also contains information about how UK residents can write their will for free, with our partners at Farewill. https://www.encephalitis.info/news/the-what-why-when-and-where-of-will-writing/

    If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

    If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

    Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

    Follow Encephalitis International:

    Facebook: https://www.facebook.com/encephalitisinternational

    LinkedIn: https://www.linkedin.com/company/encephalitisinternational

    Instagram: https://www.instagram.com/encephalitisinternational

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    33 mins
  • The Encephalitis Podcast Ep 48 - Clinical Trials with Stacey Clardy
    Mar 19 2025

    In this episode, Prav - Senior Medical Writer for Encephalitis International - talks to Dr Stacy Clardy about clinical trials to to find out more about this important aspect of developing treatments for encephalitis. Doctor Clardy is both clinical and research faculty in the Division of Neuroimmunology and Autoimmune Neurology within the Department of Neurology at the University of Utah and the Salt Lake City Veterans Affairs Hospital. Her clinical specialisation and research focus is in the field of autoimmune neurology. Dr Clardy is the Principal Investigator, PI of the ExTINGUISH trial, a randomised clinical trial for NMDA receptor encephalitis at 37 sites, including two European sites, with enrolment having begun in early 2022.

    If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

    If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

    Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

    Follow Encephalitis International:

    Facebook: https://www.facebook.com/encephalitisinternational

    LinkedIn: https://www.linkedin.com/company/encephalitisinternational

    Instagram: https://www.instagram.com/encephalitisinternational

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    57 mins
  • The Encephalitis Podcast Ep 47 - Brain Infectious Global (BIG) Outcomes with Dr Bhagteshwar Singh
    Mar 12 2025

    In this episode Dr Ava Easton is joined by Dr Bhagteshwar Singh talking about improving the diagnosis and treatment of encephalitis in low to middle income countries. Dr Bhagteshwar Singh is back in the UK, having been based at Christian Medical College in Vallor, India, and Queen Elizabeth Central Hospital in Blantyre, Malawi in the last year. He's also a clinical research fellow and specialty registrar in infectious diseases and general internal medicine at the University of Liverpool in the UK. Please see below the links mentioned in the podcast.

    https://www.liverpool.ac.uk/people/bhagteshwar-singh

    https://braininfectionsglobal.tghn.org/the-programme/scientific-background/

    https://braininfectionsglobal.tghn.org/resources/brain-infections-global-tools/

    If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

    If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

    Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

    Follow Encephalitis International:

    Facebook: https://www.facebook.com/encephalitisinternational

    LinkedIn: https://www.linkedin.com/company/encephalitisinternational

    Instagram: https://www.instagram.com/encephalitisinternational

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    40 mins
  • The Encephalitis Podcast Ep 46 - Patient and Public Involvement in low to middle income countries
    Mar 10 2025

    In this episode, Emma Collins, Patient and Public Involvement Manager at Encephalitis International, talks to Dr Ava Easton, CEO at Encephalitis International and Chair of the PPI panel, about improving the work of patient and public involvement (PPI) driven by Encephalitis International in a study that looked at improving diagnosis and treatment of encephalitis in low-to-middle income countries.

    If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

    If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

    Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

    Follow Encephalitis International:

    Facebook: https://www.facebook.com/encephalitisinternational

    LinkedIn: https://www.linkedin.com/company/encephalitisinternational

    Instagram: https://www.instagram.com/encephalitisinternational

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    23 mins
  • The Encephalitis Podcast Ep 45 - Diane: Lived Experience of Autoimmune Encephalitis
    Mar 5 2025

    In this community story episode of The Encephalitis Podcast, Prav, Senior Medical Writer, meets with Team Encephalitis Volunteer, Diane.

    Diane, 22, from London. is a final year Psychology with Cognitive Neuroscience undergraduate student, aspiring clinical neuropsychologist, speaker, social entrepreneur, encephalitis overcomer and volunteer. Diane had auto-immune encephalitis in 2018, when she was 15 which encompassed months in a semi-coma state where she couldn’t talk, walk, eat or see due to complete vision loss from high intracranial pressure.

    Diane discusses her lived experience, reintegration into education and the importance of empowerment when going through recovery after encephalitis.

    If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

    If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

    Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

    Follow Encephalitis International:

    Facebook: https://www.facebook.com/encephalitisinternational

    LinkedIn: https://www.linkedin.com/company/encephalitisinternational

    Instagram: https://www.instagram.com/encephalitisinternational

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    18 mins