When Ginny Hughes's oldest daughter, Mallory, was born, she knew something was terribly wrong. Ginny started talking to doctors, they told her she was having "the mommy worry syndrome." But Ginny was a nurse and knew to trust her instincts.

Eventually Ginny took Mallory to see Dr. Celia Ores, a pediatrician in New York. All Dr. Ores had to do was kiss Mallory and taste her salty skin, and she knew -- Mallory had cystic fibrosis. After a more formal "sweat" test, the diagnosis was confirmed, and Ginny then devoted the rest of her life to caring for Mallory and her sister, getting them the best treatment, teaching other caregivers their care regimens, traveling to New York City every three months for appointments. When Mallory was diagnosed, the life expectancy for cystic fibrosis patients was in the teens or early 20s. She's now 36.

Ginny Hughes lives in Greenwich, Connecticut and helps Mallory with her own kids. “My health is so good because of her care," Mallory says of her mom. "She taught me how to take care of myself, she got me this far, and now medications are out that make cystic fibrosis a side dish to my life."

Artwork by Paula Mangin (@PaulaBallah)

Music composed and performed by Andrea Perry

Producer: Claire Trageser

Social Media: Claire Trageser

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