💛 Navigating loss before, during, and after

Grief doesn’t begin the day your child dies. For many of us, it begins the moment we hear a diagnosis - and it never fully ends.

In this raw and unfiltered episode, I open up about the many layers of grief I’ve lived through as a medical mum: from the moment we were told our daughter had MLD, through her rapid deterioration, and the anticipatory grief that followed us like a shadow for years.

I talk about what it really means to grieve a child who’s still here, how guilt and judgement show up in the smallest of moments, and why prioritising our own wellbeing isn’t selfish - it’s essential. I also share how our daughter’s passing unfolded, what grief feels like in the days, weeks, and years after, and how I’m still learning to live with it every single day.

If you’re walking a similar path, I hope this episode helps you feel less alone — and gently reminds you that there’s no wrong way to grieve.

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What happens when your worst fear becomes your reality - not once, but twice?

In this raw and deeply personal episode, I share the story I never imagined I’d have to tell. This is the journey of my twin boys: from their diagnosis with the same rare, life-limiting genetic condition as their sister, to the desperate race against time for a treatment that didn’t yet exist in the UK.

It’s a story of impossible decisions, international hospitals, family separation, and the kind of strength you only discover when your children’s lives are on the line. You’ll hear about our treatment journey to Milan, the emotional toll of being torn between countries and kids, and the earth angels who showed up when we needed them most.

This isn’t just our story - it’s the reality for so many medical mums navigating systems that weren’t built for the intensity of our lives. If you’ve ever felt alone, if you’ve ever had to fight harder than you thought possible, or if you just want to understand what that fight really looks like… this one’s for you.

💛 If this episode speaks to you, I’d love to hear from you. Leave me a voice message HERE or come and join the Bravely Connected community - a private space for medical mums who just get it.

In this episode of Bravely Together, I share the story I never thought I’d have to tell - the day we received my daughter’s diagnosis. From the first concerns and missed milestones to the tests, the long waiting game, and finally hearing the words that changed our lives forever.

This episode is raw. It is hard to share. But it’s real, and it matters - because too many parents walk this road in silence.

If you’ve ever felt like no one else could possibly understand, this one is for you.

Content note: This episode contains discussion of child diagnosis, terminal illness, pregnancy during medical crisis, and emotional trauma. If you are currently in a vulnerable place, please take care of yourself and feel free to pause or come back to this episode when you are ready.

Episode 1: When You Do Everything Right and Life Still Breaks Your Heart

In this first episode of Bravely Together, I take you back to the beginning. Before the diagnosis. Before the twins. Before the community.

I share my personal story of growing up with an upper limb difference, navigating identity and love, and stepping into motherhood with hope, only to be met with the unimaginable.

This is the story of how my daughter’s rare genetic condition changed everything. It is about the shock of receiving no clear answers, the moment we found out we were having twins, and the fear that followed us through every appointment.

If you’ve ever felt like you did everything right and life still crumbled around you, this episode is for you. You are not alone.