Showing results for "mother" in Brain & Nervous System

When Jenny Lexhed and her husband have their first child Lucas, they are living the dream. They're happily married, they've just bought a house, the company they built together from the ground up is starting to blossom. But with the arrival of their son, a feeling of anxiety slips into their life. What starts as a feeling becomes a conviction.

Lina was a precocious toddler - charming, chatty, joyful. At the age of three, in the aftermath of her second MMR vaccine, first came a seizure, and then, to her parents’ horror, the loss of Lina’s ability to play, use language, and control her impulses. Over the next few years they continued to lose Lina. She communicated her acute discomfort by biting, screaming, hitting, laughing maniacally, and throwing violent tantrums.

As many as 2.5 million Americans suffer from ME/CFS (Chronic Fatigue Syndrome and fibromyalgia), devastating chronic illnesses that to date has no test for diagnosis. A lesser-known condition, hypermobile Ehlers-Danlos syndrome, considered to be a genetic connective tissue disease, affects every system of the body, particularly the nervous system. These debilitating diseases can be so difficult to properly diagnose that patients, often bedridden with pain, exhaustion, and many other symptoms, go through further hell when they are not believed that they’re sick.

Jesse Cooper was an honor-roll student who loved to windsurf and write poetry. He also had severe cerebral palsy and was quadriplegic, unable to speak, and wracked by seizures. He died suddenly at age 17. In fiercely honest, surprisingly funny, and sometimes heartbreaking prose, Jesse's mother, Marianne Leone, chronicles her transformation by the remarkable life and untimely death of her child.

When her once-glamorous and witty novelist-mother got Alzheimer's, Eleanor Cooney moved her from her beloved Connecticut home to California in order to care for her. In tense, searing prose, punctuated with the blackest of humor, Cooney documents the slow erosion of her mother's mind, the powerful bond the two shared, and her own descent into drink and despair.