
Where Did Diabetes Distress Come From?
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About this listen
Diabetes distress affects 40% of adults with type 1 diabetes, but what exactly is it and where did the research come from? Neil explores the research, shares practical insights, and provides tools for managing the mental load of T1D.
What You'll Learn
• The definition of diabetes distress - It's not just 'having a bad day' with blood sugars
• Research history - From the PAID scale (1990s) to the T1-DDS today
• Key statistics - Why 40% of T1Ds experience moderate to high distress
• Assessment tools - Introduction to the T1-DDS-7 and 28-question versions
• Important distinction - How diabetes distress differs from clinical depression
Key Takeaways
Diabetes distress is real and measurable. Researchers didn't study this for fun - they created tools because the mental load of T1D management is significant.
You're not alone in this. If you've felt overwhelmed by the 24/7 demands of diabetes management, you're experiencing what nearly half of people with type 1 feel.
Take Action
Ready to assess your own diabetes distress? Both the T1-DDS-7 (quick) and 28-question (detailed) assessments are available at Neil's website.
Resources
Helpful resources and newsletter: yourbestt1dyear.com
Sponsor
Blue Circle Health offers free coaching and care that fits real life. Sign up free: bluecirclehealth.org
Connect
Instagram: @thebetes | TikTok: @the.betes | Website: yourbestt1dyear.com
Books on Amazon: Type 1 Diabetes - One Day at a Time or Type 1 Diabetes - True Stories