What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2] cover art

What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]

What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]

Listen for free

View show details

About this listen

This episode is Part 2 of our series “What We Can Learn from the Rare Disease Community.” Last week, we heard from Bobby Glen about navigating the healthcare system as a parent of a child with HNRNPH2. Today, his wife Nicole—who is also a pediatrician—joins us to share how raising a child with a rare disease has shaped the way she practices medicine, approaches patient advocacy, and supports families navigating speech and communication challenges.

Event Alerts:

Docs on Stuttering – May 8 (Use "PROUD25" at checkout for a free ticket)

Docs on Disability – May 15, featuring Marlee Matlin’s Sundance-premiered documentary

Philly Proud Stutter Gathering – May 19

Save The Date: Proud Stutter Annual Gala in San Francisco – October 9 (listeners get 50% off tickets!)

And yes, Survivor fans—our recap will be back to cover the season finale, which airs on May 21, 2025! Go Mitch!



Support this podcast at — https://redcircle.com/proud-stutter/exclusive-content

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy

What listeners say about What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]

Average Customer Ratings

Reviews - Please select the tabs below to change the source of reviews.

In the spirit of reconciliation, Audible acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respect to their elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.