Why is hygiene such a struggle for PDA autistic kids?

And why does pushing only make it harder?

In this episode of the PDA Parenting Podcast, Amy explores the real reasons behind resistance to toothbrushing, showering, and other daily self-care routines. You’ll learn how nervous system responses, sensory sensitivities, and demand avoidance all play a role, and why it’s never about laziness or willfulness.

Amy shares practical, creative strategies that ease the pressure, support autonomy, and restore connection - so parents can move away from shame and toward compassion.

Whether it’s silly characters like “Ms. Helga,” salon visits, or scaffolding with small steps, this conversation offers hope, empathy, and tools for families walking this path.

Want more support? Join the waitlist for my upcoming 12-week parent course, Raising Kids with Big Baffling Behaviors (developed by Robyn Gobbel, led by me, Amy K). You’ll be the first to know when doors open!

👉 Join the waitlist here: https://amykcoach.myflodesk.com/bafflingbehaviors

Parenting a PDA teen means our role is always evolving - and nowhere is that more clear than during big life transitions like starting college, a first job, or moving away from home. In this episode of The PDA Parenting Podcast, Amy Kotha shares how scaffolding, cues of safety, and collaborative strategies can help PDA teens and young adults navigate overwhelming changes without collapsing under the weight of demands.

Drawing on neuroscience, polyvagal theory, and her own experience supporting her PDA autistic daughter as she transitioned into college life, Amy explores:

• What scaffolding really means for PDA kids, teens, and young adults
• Why cues of safety* (sensory, emotional, relational) are not extras but nervous system essentials
• How to lower demands and support autonomy through collaboration
• What these transitions mean for parents, whose nervous systems are also adapting and shifting

Whether your child is starting a new school year, leaving home, or facing any big change, this episode will help you reframe scaffolding as a strength - a bridge toward growth, safety, and connection.

Because while this path is hard, your presence, your love, your being - is enough.

* Gobbel, R. (Host). (2020–present). The Parenting After Trauma Podcast [Audio podcast]. Robyn Gobbel, LLC. https://robyngobbel.com/podcast

In this powerful episode of The PDA Parenting Podcast, host Amy Kotha is joined by Diane Gould, LCSW - a veteran therapist, late-diagnosed autistic woman, and Director of PDA North America. Diane shares her personal journey to discovering her neurodivergence and how it informs her professional mission to amplify PDA awareness and advocacy across the continent.

Together, Amy and Diane dive into what it truly means for neurodivergent individuals - especially those with a PDA profile - to find their voice in a world that often misunderstands them. From school struggles and masking to identity, self-advocacy, and parenting with presence, this episode is rich with insight, validation, and practical wisdom.

Highlights:

• Diane’s late autism diagnosis and the surprising story behind it
• The founding and mission of PDA North America
• The power of lived experience in supporting PDA families
• Rethinking behavior through the lens of curiosity and nervous system regulation
• What it means to scaffold our kids' voices — not replace them
• A vision for a truly neurodivergent-affirming world

Resources & Contact:

• 📚 Navigating PDA in America by Diane Gould & Ruth Fidler
• 🌐 PDA North America www.pdanorthamerica.org
• PEERS®-Inspired Friendship & Relationship Program https://dianegouldtherapy.com/peers/
• 📧 Email: info@pdanorthamerica.org or dianegouldtherapy@gmail.com

✨ To learn more about Amy’s work or to get coaching support, visit www.amykcoach.com

What is it really like to grow up with a sibling who has PDA (Pathological Demand Avoidance) autism? In this powerful episode, I sit down with my daughter Devika -an autistic, ADHD teen herself - to talk about her personal experience as the sister of a PDA child. Devi shares openly about the emotional ups and downs, how family dynamics were affected, and what helped her feel seen in a home where one child needed constant support.

This heartfelt conversation touches on the invisible sibling role, neurodivergent family dynamics, and the unique challenges of being both a support system and a child navigating her own needs. If you’re a parent wondering how to support your neurotypical or neurodivergent child alongside a PDA sibling, this episode is a must-listen!

• Growing up with a sister who struggled with leaving the house for school created early confusion and stress
• Feeling the need to stay quiet and not express needs because they "weren't as important" as her sister's
• Taking on the "mascot" role in the family – using humor and distraction to cope with difficult situations
• Finding school to be a crucial escape from home life struggles
• The importance of discovering "safe people" outside the family who see you as an individual
• Learning that PDA outbursts aren't personal: "They take it out on you because they know you're somebody who will never leave them"
• How sibling relationships can evolve positively over time with understanding and communication
• Advice for siblings currently living through difficult family dynamics with PDA

Download the free guide "Invisible Roles in PDA Families" through amykcoach.com to explore the roles your children might be taking on and find ways to better support all family members.

How does growing up with a PDA sibling shape a child’s identity, needs, and voice? In this episode of The PDA Parenting Podcast, Amy Kotha explores the often overlooked experience of siblings in families raising a child with Pathological Demand Avoidance (PDA autism).

Drawing from her own family’s story and her experience as a parent coach, Amy shares:

• How PDA shapes family dynamics and sibling roles
  
  
  
• Personal reflections on her daughter Devi’s journey as the sister of a PDAer
  
  
  
• A breakdown of common survival roles and how they show up in siblings
  
  
  
• Gentle, actionable ways to name, validate, and repair sibling experiences in high-stress homes
  
  
  

The concept of survival roles—like the Hero, Mascot, Lost Child, and Scapegoat—has its roots in family systems theory. But in the context of parenting neurodivergent or trauma-impacted children, I lean on the work of Robyn Gobbel, especially in Raising Kids with Big, Baffling Behaviors. She reframes these roles as nervous system adaptations, not character flaws—helping us see them with more compassion and flexibility.

Whether you're a parent carrying guilt, a sibling seeking understanding, or a professional supporting PDA families, this episode offers compassion, clarity, and hope.

🎧 Tune in to learn how to better support all the children in your home - not just the one in crisis.

🔗 Free printable: “Invisible Roles in PDA Households” available at www.amykcoach.com

🟡 Next episode: A powerful conversation with Amy’s daughter Devi on what it’s really like growing up with a PDA sibling!

Resource/Citation:

Gobbel, Robyn. Raising Kids with Big, Baffling Behaviors: The Neuroscience of Connection and Communication.

Jessica Kingsley Publishers, 2023.

In this powerful and deeply personal episode, Amy is joined by her daughter Maya - who shares her lived experience as a PDA autistic teen. Together, they explore the PDA experience of feeling trapped: at school, in the medical system, and inside her own mind.

From second-grade meltdowns to high school shutdowns to hospital sensory overwhelm, Maya speaks candidly about what “feeling trapped” really means for someone with a PDA profile. Amy and Maya discuss nervous system overwhelm, the importance of autonomy, why being heard matters, and how PDAers often struggle to express what’s happening internally.

This episode is a must-listen for parents, teachers, and professionals looking to better understand and support PDA kids from the inside out.

If this episode helped you, please subscribe and leave a 5-star review—it helps other PDA parents find this podcast!

In this episode, Amy Kotha explores the powerful theme of feeling trapped - a core experience for many PDA autistic kids and a familiar reality for their parents, too. She breaks down what “trapped” looks like at different ages and shares five ways to help everyone in the family feel more free.

For PDAers, trapped doesn’t just mean physically stuck - it’s about a lack of autonomy, emotional overwhelm, and a nervous system in constant survival mode. Amy walks through how this shows up in kids, teens, and parents alike, and offers strategies to break the cycle: scaffolding with care, shifting expectations, balancing power, and watching for learned helplessness.

If this episode resonated with you, please subscribe and leave a 5-star review—it helps other parents find this support!

Resources/Sources Mentioned:

Amanda Diekman, Low Demand Parenting https://www.amandadiekman.com/

In this reflective solo episode, Amy Kotha shares a deeply personal story about parenting her PDA daughter through a major life transition - and how her daughter’s struggles unexpectedly derailed her own plans.

Amy explores what happens when parenting a child with PDA autism pulls us off our own path and into their emotional storms. From delayed podcast launches to insights about co-regulation, enmeshment, and grace, this episode offers validation and practical wisdom for parents feeling stuck. You’ll learn how to stay grounded, reframe guilt, and remember that your needs matter too.

If this resonated with you, please subscribe and leave a 5-star review—it helps more PDA parents find this podcast!