The Importance of Doing Your Research, Making Connections and Learning to Advocate...A Mother's Perspective: A Conversation with Elena
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The Importance of Doing Your Research, Making Connections and Learning to Advocate...A Mother's Perspective: A Conversation with Elena
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About this listen
Elena, a mother of a young girl diagnosed with VWD Type 3 severe has become passionate about spreading awareness and sharing information via social media with others. She and her husband live in Paris, France and their daughter is now one of the youngest patients to be using Hemlibra to help treat her bleeding disorder. Listen in as we discuss the importance of seeking out information, not being afraid to ask and question your healthcare providers, struggling and managing with PTSD, and the benefits of finding community for support.
Be sure to follow @zaichee and feel free to connect with Elena through that page.
Music - reCreation by airtone (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/airtone/59721