On this episode of Life Beyond the Diagnosis, we dive into an incredibly inspiring and heartfelt conversation with Shawna Ammons, a devoted mother and fierce advocate for her ten-year-old son, Ryker. Born with gastroschisis, a rare condition where his intestines developed outside his body, Ryker’s journey has been one of immeasurable strength, resilience, and hope. Joined by hosts Brianna Baskerville and Brianna Gallegos, Shawna shares the profound challenges her family has faced, from long hospital stays and navigating complex medical needs, to fighting for Ryker’s right to a safe and inclusive education.

You’ll hear Shawna’s honest reflections on isolation, advocacy, and the life-changing support of Wichita’s Littlest Heroes, an organization devoted to families of medically complex children. This episode is a moving reminder of the power of community, perseverance, and the difference that kindness and connection make for families on this journey. Plus, we’re joined by Steven from Elite Electric, one of the organization’s generous partners, for a look at how local businesses are helping to light up the lives of hero families like Shawna’s.

Grab a tissue and settle in. You won’t want to miss this story of faith, love, and enduring hope, straight from the heart of a true hero mom.

Chapters:

00:00 Prenatal Diagnosis: Gastroschisis Discovery

06:40 Navigating New Motherhood Challenges

09:50 Always Look for the Good

12:28 G Tube vs. Central Line

20:12 Strict Health Protocols for Riker

20:54 Challenges of Social Life as Medical Parent

25:22 Legal Battle Over School Admission

27:24 Kansas Law: RN Required for Central Lines

31:23 Surgery Gone Wrong: A Parent's Journey

36:20 First Pool Power Setup

38:17 Parenting Challenges and Strength

40:33 Support Wichita's Littlest Heroes

💛 If Shawna and Ryker’s story touched you, please like, subscribe, and share to help us build a community where no one feels alone.

Find out more about Wichita’s Littlest Heroes:
https://www.wichitaslittlestheroes.com/