We couldn't be more grateful for such a powerful conversation with Kristen Carrier. Her daughter August was born congenital diaphragmatic hernia (CDH) - unknown to her and her husband - and passed away shortly after birth. Her ability to pay-it-forward by leading with kindness and vulnerability, left an indelible impression. She had incredible advice for other grieving parents and is raising her two boys to not only remember August, but to openly talk about her and celebrated her.

We welcome Monica to the studio this week who shares not only her story with child loss and infertility but her commitment to women's health by founding Rhea Community. Her mission is to empower women to step into their reproductive power. By creating a safe space for women to share their stories, she's helping normalize conversations around pregnancy loss and infertility.

We welcome Kristi and her daughter Stella in the studio this week to talk about her son (and brother) Trey who has CACNA1A. CACNA1A is located on the 19th chromosome and it plays a crucial role in the brain by encoding a protein that forms calcium channels. This dynamic duo is creating waves by advocating for disabilities and rare disease!

Our 50th episode, welcomes Tricia Rogers to the studio. Her son Chase has lived with severe food allergies, since birth. We discuss how she navigated it as a first time new mom, and how she manages it as he grows. Her tips and tricks are incredibly helpful for any parent facing childhood allergies!

We're honored to speak to Dr. David Fogelman this week - a physiatrist at Boston Children's Hospital. His perspective on patient care and finding a voice for those who are seeking advice and support, left us in awe. He's truly found his joy in pediatric medicine.

We welcome another BRAT1 mom to the studio this week - Core Eaton. The journey she experienced with her daughter Selah was profound and her message of love and light is one to be shared and celebrated. As she pays it forward with Selah's garden, we hope her message of positivity leaves a lasting impact.

This week, we welcome Sofie to the studio. A mom who found Lindsay while trying to make sense of her son Leo's BRAT 1 diagnosis. She shares the story of her son Leo, how she pays that forward with her two daughters and how she's keeping him and his memory alive.

What a pleasure to have Jon and Jenn in the studio this week. We discuss this son Zach, who passed away in November 2021 at the age of 16, of Osteosarcoma, but focus on how they're paying it forward. They've developed Zach's Bridge, a certified 501(c)3 organization, that provides 1:1 peer support for advanced and bereaved pediatric cancer caregivers. They are truly focused on their goal of easing the pediatric cancer journey, and giving the entire family comfort and time to focus on what truly matters to them!

Osteosarcoma

Pediatric cancer

https://www.zachsbridge.org/