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Let's Talk MND

Let's Talk MND

By: Jane Simpson
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About this listen

You might imagine a podcast interviewing people with MND may be depressing or sad. Whilst the guests with MND do not sugar-coat their disease, they all know their outcome, these conversations are insightful, at times joyful, at times it will make you cry. Unusual for a podcast, some of the guests are unable to speak, but thanks to AI they have a voice. These are the stories behind the MND Beast. The people behind the label, the people we are trying to help with fundraising, care and research.2024 Hygiene & Healthy Living Physical Illness & Disease
Episodes
  • Let's Talk MND - Firies Climb for MND, Prof Dom Rowe, Gavin Clifton, Phil Camden
    Aug 14 2025

    The Firies Climb for MND was created in 2015 by firefighter Matt Pridham after his best friend, Adam Regal, was diagnosed with MND. After learning that there was no known treatment or cure, they became determined to join the fight to find one. Together, they pledged to raise as much money and awareness for MND as possible.

    All funds raised go to Prof. Dominic Rowe's Macquarie University Centre for Motor Neurone Disease Research. It is the largest MND research centre in Australia, receives no federal or state funding to operate and is completely run through the support of public donations and research grants. All researchers work together in one facility, on one topic, with one vision: a world without MND.

    You can join or donate here https://firiesclimbformnd.org.au/cms/home

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    32 mins
  • Let's Talk MND - Ron and Annie Hobden
    Aug 13 2025

    On June 22, 2023, Ron “Hobbo” Hobden’s life changed in a single sentence: You have motor neurone disease. No cure. No treatment. Just a brutal countdown he never saw coming.

    A week earlier, the 40-year-old rugby player, devoted husband, and proud dad to Lizzie, 5, and Henry, 3, had been training for a marathon. Fit, strong, and full of plans, he had no reason to imagine his future would be cut short.

    “I remember Annie sitting beside me, trying to hold back her tears,” Ron recalls. “All I could think about was our kids. How do you tell them their dad is dying?”

    Instead of surrendering to despair, Ron made a decision that day: MND would shape his life, but it would not define it. It might take his body, but it would never take his fight, his love, or his determination to inspire others.

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    49 mins
  • Let's Talk MND - Damian & Jane Andrews
    Aug 4 2025

    Damian Andrews was 42 years old when he was diagnosed with MND.

    Damian says he is going to "ride until he dies"

    He and his wife Jane & their 3 boys live in Hervey Bay in QLD.

    They are a dynamic family. Living every day the best they possibly can with MND.

    They are also absolute champions, raising awareness of MND through their Facebook page which you can join here and throughout the media.

    https://www.facebook.com/profile.php?id=61556505521638&sk=mentions

    They are also selling "merch" with all profits going to Fight MND https://damiansjourney.deco-apparel.com

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    43 mins
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