Let's Talk MND

By: Jane Simpson
  • Summary

  • You might imagine a podcast interviewing people with MND may be depressing or sad. Whilst the guests with MND do not sugar-coat their disease, they all know their outcome, these conversations are insightful, at times joyful, at times it will make you cry. Unusual for a podcast, some of the guests are unable to speak, but thanks to AI they have a voice. These are the stories behind the MND Beast. The people behind the label, the people we are trying to help with fundraising, care and research.
    2024
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Episodes
  • Let's Talk MND - Prof. Brad Turner
    Mar 26 2025

    Professor Bradley Turner is Head of the Motor Neuron Disease Group and Research Lead of the Brain Health and Repair Mission at The Florey Institute. His group has a broad research interest in neurodegenerative diseases affecting the voluntary motor system in the brain and spinal cord. His team focuses on MND.

    This is a very brief summary but if I spoke of all the research and publications we would be here all day.

    Brad has a huge brain and a huge heart.

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    59 mins
  • Let's Talk MND - Peter and Tess Russo
    Mar 11 2025

    In 2022, Peter’s life took an unexpected turn when he was diagnosed with MND. While initially confronting, this diagnosis became a catalyst for transformation. Rising above feelings of helplessness, Peter stands as a testament to the strength of the human spirit, embracing a renewed sense of purpose: to turn his personal journey into a platform for advocacy and hope.

    As an Ambassador for MND Australia, Peter is passionately committed to raising awareness by amplifying the voices of those affected; as well as fostering greater understanding, compassion and meaningful change around this devastating disease.

    Peter is an accomplished professional with extensive experience within the private, public, and non-profit sectors; encompassing leadership, behavioural change, stakeholder engagement and governance. Peter also served with distinction in the Royal Australian Air Force for over 35 years, an experience that shaped his resilience, discipline, and deep sense of purpose.

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    55 mins
  • Let's Talk MND - Dr. Rowan Hearn
    Mar 2 2025

    Dr Rowan Hearn is the Clinical Director Palliative Medicine at Calvary Health care.

    Rowan supports the improvement of quality and safety in palliative care, having served as a member of the Governance Committee for the Palliative Care Clinical Network for the Department of Health, and Co-Chair of the Network’s Expert Working Group for Care of the Dying Person.

    Dr Hearn is active in research into Neuro Palliative Care and telehealth with further research interest in carer support. Prior to working at CHCB Dr Hearn spent 15 years working in the National Health Service (NHS) in London, during which time he completed a Masters in Medical Ethics and Law and was lead for clinical governance for his service.

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    48 mins

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