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Glioblastoma aka GBM

Glioblastoma aka GBM

By: Amber Barbach
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About this listen

 Glioblastoma aka GBM is a podcast by the Glioblastoma Research Organization that highlights the stories of our community, from Glioblastoma Warriors, to caregivers, medical advisors, and more. Glioblastoma aka GBM is hosted by Amber Barbach, who founded the Glioblastoma Research Organization in 2018, after her father was diagnosed with and passed away from Glioblastoma. This podcast is an exploration of stories and personal experiences, and is not meant to be taken as medical advice of any kind. If you have questions, always consult with your own medical providers and healthcare team. You are warmly invited to connect with the team at the Glioblastoma Research Organization, and share your own stories and experiences. For more information, please visit gbmresearch.org.2022 Hygiene & Healthy Living Physical Illness & Disease Social Sciences
Episodes
  • Unlocking Pediatric Brain Tumors at Bambino Gesù

    Unlocking Pediatric Brain Tumors at Bambino Gesù
    Jul 3 2025
    In this episode, we visit Bambino Gesù Children’s Hospital in Rome to explore the pioneering pediatric brain tumor research being led by Maria Vinci, MD. Her team focuses on high-grade pediatric brain tumors including diffuse midline gliomas, with the goal of advancing more personalized and effective therapies for children around the world. We tour three key research labs that play a central role in their work: the patient-derived model lab, the high-content imaging lab, and the Hyperion lab, which uses advanced single-cell spatial proteomics to better understand the tumor microenvironment. Together, these technologies allow Dr. Vinci’s team to investigate how these aggressive tumors develop and respond to potential treatments. This episode provides a rare behind-the-scenes look at how leading scientists and clinicians in Rome are pushing the boundaries of pediatric neuro-oncology and working to bring new hope to families facing devastating diagnoses. This episode is intended for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare provider for guidance specific to your health or treatment plan.
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    23 mins
  • The Lab of Javad Nazarian, PhD, MS and University Children's Hospital Zurich

    The Lab of Javad Nazarian, PhD, MS and University Children's Hospital Zurich
    May 15 2025
    In this episode, we’re in Zurich at the University Children’s Hospital to explore the pediatric brain tumor research being led by Dr. Javad Nazarian, whose lab focuses on diffuse midline gliomas (DMGs) and other rare, aggressive pediatric brain tumors. Dr. Nazarian’s work, supported in part by the Glioblastoma Research Organization through Project DeLaRoSa, is aimed at uncovering the biological underpinnings of these tumors to open doors for more targeted and effective treatments. We speak with several members of his research team — including Kamil Wojnicki, PhD, Matteo Bimbati, MSc, and Bettina Kritzer, MSc — about current challenges in the field, the value of interdisciplinary collaboration, and the future of pediatric neuro-oncology. We also hear perspectives from Sandra Fernandes Dias, MD, and Prof. Dr. Michael Grotzer, both of whom work at the University Children’s Hospital, on the clinical realities of treating these diseases and how research and patient care intersect in a hospital setting. This episode offers a behind-the-scenes look at a globally collaborative effort to improve outcomes for children and families facing devastating diagnoses. This episode is intended for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare provider for guidance specific to your health or treatment plan.
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    28 mins
  • CeGaT and the Future of Genetic Sequencing

    CeGaT and the Future of Genetic Sequencing
    May 1 2025
    Season 4 of Glioblastoma aka GBM kicks off Brain Tumor Awareness Month with a closer look at CeGaT, a genetic diagnostics company based in Tübingen, Germany. Founded in 2009 by Dr. Saskia Biskup and Dirk Biskup, CeGaT focuses on identifying rare diseases and tumor-specific mutations through advanced sequencing technologies. In this episode, we speak with Dr. Biskup and Florian Battke, Head of Research & Development, about what genetic sequencing is, how it’s used in the context of brain tumors, and what they see as the next frontier for diagnosing and treating diseases like glioblastoma. We discuss how long-read sequencing may offer greater accuracy in identifying genetic changes and what that could mean for patients navigating difficult diagnoses. This episode explores the broader role that genomics can play in brain cancer research and the questions still left to answer as science continues to evolve. To learn more about the work CeGaT is doing, visit them online at https://cegat.com/ This episode is intended for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare provider for guidance specific to your health or treatment plan.
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    24 mins

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