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Fragile X Australia Podcast

Fragile X Australia Podcast

By: Alba Prime
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About this listen

 Fragile X Association of Australia is a member-based organisation which serves as the peak body for the Fragile X community across Australia.

We offer information, support, education, advocacy and referrals to individuals who are impacted by Fragile X-associated disorders and to their families, carers and health and disability service providers.

Visit http://fragilex.org.auCopyright Alba Prime Hygiene & Healthy Living Physical Illness & Disease
Episodes
  • Sensory Diets & Fragile X Syndrome (Bev Kadish)

    Sensory Diets & Fragile X Syndrome (Bev Kadish)
    Jun 20 2025
    Presented by Bev Kadish, occupational therapist, from WriteStart OT. Discussion of sensory diets as a personalized plan of sensory activities designed to help individuals better regulate their sensory systems and improve focus and attention. It is a structured approach to providing the right amount and type of sensory input throughout the day. Individuals with Fragile X syndrome often have difficulties with sensory processing and regulation, and sensory diets may assist with helping the child or adult remain calm, focused and organised.
    The webinar outlines: * how to create sensory diet * an example of a proactive sensory diet * activating and calming movement activities * deep pressure input/proprioception * heavy work activities * maintaining regulation (fidget and focus) * vibration * oral input *breathing cards * auditory system * visual input *olfactory input *withdrawal area * calming sensory room or space * community based activities * list of sensory resources Bev is an experience OT who has supported many children and adults living with Fragile X syndrome, through her own private practice and the Fragile X Alliance Clinic in Melbourne.
    Many thanks to the Qantas Side by Side Foundation grant for supporting this webinar.
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    38 mins
  • IVF & PGD for Fragile X PM Carriers (Dr Mark Livingstone)

    IVF & PGD for Fragile X PM Carriers (Dr Mark Livingstone)
    May 29 2025
    33 mins
  • FXPOI: What Do I Need to Know? Dr Amanda Vincent

    FXPOI: What Do I Need to Know? Dr Amanda Vincent
    Mar 26 2025
    Presented by Clinical A/Prof Amanda Vincent, MBBS, BMed Sci, PhD, FRACP. Dr Vincent is a clinician researcher combining clinical practice in menopause with menopause related research, translation and education. (Endocrinologist, Menopause Clinic, Monash Health; Head, Early menopause Research, MCHRI, Monash University; Co-Chair POI guideline development group) Dr Vincent's comprehensive presentation covers:
    • NEW INTERNATIONAL GUIDELINE RECOMMENDATIONS on Premature Ovarian Insufficiency published December 2024
    • WHAT IS POI? How common is it? What causes POI?
    • WHAT IS FXPOI? And what causes it?
    • WHAT ARE THE RISK FACTORS FOR FXPOI, including CGG repeat range
    • WHAT ARE THE IMPACTS OF FXOI? What are the symptoms?
    • HOW ARE POI/ FXPOI DIAGNOSED? What are the barriers to diagnosis?
    • HOW DO YOU MANAGE FXPOI for your health and wellbeing? Therapies? Other options?
    • IF YOU HAVE FXPOI - what are the essentials?
    • WHAT ARE THE FERTILITY ISSUES associated with FXPOI?
    • WHERE TO SEEK HELP about POI.
    Dr Vincent profiled new resources on POI for WOMEN and HEALTH PROFESSIONALS:
    • NEW FACTSHEETS & OTHER RESOURCES about POI, co-designed by women with early menopause/POI
    @ https://www.eshre.eu/Guidelines-and-L... Note: Dr Vincent is Past President of the Australasian Menopause Society and current board member of the International Menopause Society. Webinar production and recording by ‪@albaprime‬ for Fragile X Association of Australia
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    49 mins
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