Episode 132: The Power of Choice: Nick Palmer on Declining Transplant and Choosing Quality of Life cover art

Episode 132: The Power of Choice: Nick Palmer on Declining Transplant and Choosing Quality of Life

Episode 132: The Power of Choice: Nick Palmer on Declining Transplant and Choosing Quality of Life

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 In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Nick Palmer, who shares his extraordinary journey of living with chronic kidney disease (CKD) and focal segmental glomerulosclerosis (FSGS). Diagnosed at just 19 years old, Nick opens up about navigating the complex realities of kidney disease as a young adult—balancing university, a demanding career, and the emotional toll of a condition that would require multiple transplants and ongoing dialysis. With unflinching honesty, Nick reflects on his decision to decline a third kidney transplant and instead embrace home nocturnal dialysis—a choice that profoundly improved his quality of life, restored his sense of independence, and helped him reclaim control of his health. He discusses the impact of this decision on his mental well-being, family life, and career, and how it ultimately allowed him to thrive in ways he never expected. Nick’s story challenges traditional narratives around kidney treatment, shining a light on the importance of patient choice, education, and mental health advocacy in chronic illness care. This episode is a must-listen for anyone navigating kidney disease, healthcare professionals, or anyone seeking inspiration from a story of resilience and informed self-advocacy. Key topics include: Living with FSGS and the impact of early diagnosis The emotional and physical toll of dialysis in early adulthood The recurrence of FSGS post-transplant Choosing nocturnal dialysis and the profound benefits for quality of life Mental health, self-advocacy, and redefining what it means to live fully with CKD Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter: www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow the Podcast on WhatsApp Stay updated with new episodes and exclusive content! 👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Nick Palmer Twitter (X) https://x.com/nick_fire1 Blue Sky: https://bsky.app/profile/nick-fire1.bsky.social Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org In this powerful and informative episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined once again by the insightful and compassionate Dr. Hannah, an experienced transplant surgeon. Building on their previous conversation, Dr. Hannah returns to share expert guidance and essential strategies for navigating the complex journey of kidney disease—from diagnosis to transplantation and life beyond. This episode is a must-listen for anyone affected by kidney disease, offering a comprehensive look at renal replacement therapy. Dr. Hannah breaks down the key differences between dialysis and transplantation, and highlights the importance of preparation, planning, and patient empowerment. Listeners will gain valuable knowledge about preemptive transplantation, the benefits of living donor transplants, and critical considerations for those on the deceased donor list. Dr. Hannah also delves into often-overlooked aspects of transplant readiness, including managing polycystic kidney disease, addressing central venous stenosis, surgical prerequisites, and maintaining a healthy weight. The discussion thoughtfully explores both the physical and mental preparation required for a successful transplant journey, as well as the unique considerations for women wishing to start or grow a family after transplantation. With honesty, clarity, and encouragement, Dr. Hannah emphasises the power of being proactive and well-informed. She advocates for living fully, even while waiting for a transplant, and underscores the strength of the kidney community and the support it offers. Whether you are newly diagnosed, currently on dialysis, awaiting a transplant, or supporting someone through their kidney journey, this episode is filled with practical insights and heartfelt advice to help you take control of your health and plan confidently for the future. Listen now and be inspired to live boldly, plan wisely, and embrace hope. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/...

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