
Celiac Journey's Advocacy: The Bari Family's Call for Change
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This episode of Don’t Feed the Fear opens our month-long focus on celiac disease with a powerful conversation featuring father and son advocates Jon and Jax Bari. Together, they share their personal experiences with celiac and the urgent need for systemic change—from increased research funding to clearer gluten labeling.
We discuss how advocacy at the family level can create ripples of awareness in schools, communities, and even at the national policy level. Jon and Jax’s story highlights both the daily challenges of living with celiac and the hope that comes from pushing for a safer, more informed future.
For anyone living with or caring for someone with celiac, this episode will leave you informed and inspired to get involved.
Celiac Journey - Celiac Disease Advocacy & Education
Social Media: @celiacjourney and @glutenfinds_pa
Celiac Awareness Night at the Phillies game against the Kansas City Royals on 9/12/25:
https://mlb.tickets.com/schedule/?agency=MLB_MPV&orgid=21#/sales_group_code;salesGroupId=8314
ADINA Act – A federal bill, requiring plain language labeling, for all top food allergens and gluten containing grains in medication.
Gluten-Free Expos & Events - Wicked Gluten Free
Special thanks to Kyle Dine for permission to use his song The Doghouse for the podcast theme!
www.kyledine.com
Find Dr. Whitehouse:
-thefoodallergypsychologist.com
-Instagram: @thefoodallergypsychologist
-Facebook: Dr. Amanda Whitehouse, Food Allergy Anxiety Psychologist
-welcome@dramandawhitehouse.com