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Bridging the Gap

Bridging the Gap

By: Elma Research
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About this listen

The Bridging the Gap podcast, sponsored by Elma Research, shares conversations with organisations representing patient needs and leading research into a wide range of diseases affecting people across the world. The aim of this podcast is to highlight some of the key challenges associated with living with various conditions and to explore opportunities to bridge the gap between today’s healthcare provision and the needs of different patient communities.Copyright 2024 All rights reserved. Hygiene & Healthy Living
Episodes
  • Paradigm Shift: The New Era of IgA Nephropathy Treatment
    Jul 14 2025

    Bonnie Schneider leads the IGA Nephropathy Foundation and has been on a long journey advocating for this condition for 21 years since her 13-year-old son was diagnosed.

    Bonnie shares how she transformed a mother's determination into a global movement that's helped bring the first specific treatments for IGA nephropathy to market after decades of relying only on steroids. We explore the challenges patients face, the breakthrough treatments now available, and why this is such an exciting time for the IGA nephropathy community.

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    28 mins
  • The Silent Thief: A Paralympian's Journey with Glaucoma and Uveitis
    Jun 25 2025

    Amy Dixon is a remarkable patient advocate in ophthalmology and USA Paralympian. Amy shares her powerful journey living with glaucoma and uveitis, having undergone 42 surgeries to save her remaining 2% vision. She discusses the critical importance of early diagnosis, treatment compliance, and establishing a partnership with your healthcare providers. Amy also reveals her passion for patient advocacy and her mission to ensure better support for those diagnosed with eye conditions. Join us for this fascinating conversation about living with vision loss while maintaining an extraordinary life.

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    37 mins
  • Why We Say Disorder, Not Disease: Reframing Sickle Cell
    Jun 9 2025

    Stephanie George is a patient advocate and peer mentor for the Sickle Cell Society. Stephanie shares her powerful personal journey living with sickle cell disorder, from childhood experiences to her work supporting young people with the condition. She discusses the unpredictable nature of sickle cell pain, treatment challenges, healthcare disparities, and the importance of awareness and community support. Join us for this illuminating conversation about a condition that impacts thousands of lives worldwide.

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    40 mins
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