Beyond the Diagnosis – Episode 2: Advocacy & Finding Purpose in Survivorship Featuring: Faizel Jacobs, Founder of SASS (South African Stoma Support)
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Beyond the Diagnosis – Episode 2: Advocacy & Finding Purpose in Survivorship Featuring: Faizel Jacobs, Founder of SASS (South African Stoma Support)
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About this listen
A colo-rectal cancer diagnosis in 2016 changed Faizel Jacobs’ life forever, but it did not define him. Cancer left him with a permanent stoma, something many see as a burden—but Faizel has embraced it as his daily reminder of survival. Affectionately naming his stoma and bag "Dolce & Gabbana," he has transformed what many consider a limitation into a symbol of resilience and purpose.
Adjusting to life with a stoma wasn’t easy, and much of what Faizel learned was through trial and error. But through this journey, he also discovered a greater issue—the lack of consistent stoma care and support. Recognizing the urgent need for better resources, education, and advocacy, he founded SASS (South African Stoma Support), a community built by stomates, for stomates. The organisation fights for minimum standards in ostomy care and holistic support, ensuring that others navigating life with a stoma don’t have to do it alone.
In this episode, Faizel shares how he turned pain into purpose, why advocacy matters, and how finding meaning in survivorship can create lasting impact. Join us for an inspiring conversation on resilience, acceptance, and the power of community.