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Beyond the Count

Beyond the Count

By: ITP Australia and New Zealand
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About this listen

Beyond the Count is a podcast about life with Immune Thrombocytopenia (ITP). Through personal stories, expert interviews and practical advice, each episode explores the everyday challenges and small wins of living with a rare autoimmune condition. Whether you’re newly diagnosed, supporting someone, or just looking to learn more, this podcast is here to inform, support and connect.

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Episodes
  • Second Opinions and Shared Care: Navigating ITP with Confidence
    Oct 8 2025

    When treatments stopped working, Danielle sought a second opinion. It gave her clarity, confidence, and a new way forward.

    Getting diagnosed during a pandemic wasn’t easy, but ITP Warrior @The.No.Spleen.Queen, Danielle Hodges, knew something didn’t feel right.

    In this episode, she walks us through why she decided to get a second opinion on her ITP diagnosis, what changed as a result, and why trusting your instincts as a patient matters.

    If you’ve ever felt unsure about your diagnosis or treatment plan, this one’s for you.

    Support the show

    Thanks for listening to Beyond the Count
    For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.

    📱 Follow us on social media:
    Instagram: @ITP_ANZ
    Facebook: facebook.com/ITPANZ
    LinkedIn: ITP Australia & New Zealand
    YouTube: @ITPANZ

    🎧 Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode.

    Do you have feedback or a story to share? We’d love to hear from you. Get in touch at info@itpaustralia.org.au

    Show More Show Less
    25 mins
  • Fuelling Your Health - Managing Side Effects with Food and Supplements
    Sep 24 2025

    In the final part of our four-part Fuelling Your Health series, Dr Phil Choi explores how food and supplements may help manage some of the more common side effects linked to ITP and its treatments.

    From fatigue and iron deficiency to digestive issues and steroid-related symptoms, many people experience side effects that impact daily life. This episode looks at how nutrition can support recovery, ease discomfort and improve overall wellbeing during treatment.

    Dr Choi shares evidence-based strategies and simple tips drawn from both clinical research and real-world experience.

    Support the show

    Thanks for listening to Beyond the Count
    For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.

    📱 Follow us on social media:
    Instagram: @ITP_ANZ
    Facebook: facebook.com/ITPANZ
    LinkedIn: ITP Australia & New Zealand
    YouTube: @ITPANZ

    🎧 Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode.

    Do you have feedback or a story to share? We’d love to hear from you. Get in touch at info@itpaustralia.org.au

    Show More Show Less
    29 mins
  • ITP & Me: Creating a book for Teens, by Teens
    Sep 10 2025

    Behind the scenes of a project giving teenagers a voice in their ITP journey.

    Being diagnosed with ITP as a teenager can feel overwhelming, and finding the right information at the right time makes a big difference. In this episode, Danielle speaks with Professor Nichola Cooper, Dr Alice Hart, and Mervyn Morgan about ITP and Me: A Teen Guide to Living with ITP.

    They share how the book was developed with teens, for teens, why age-appropriate resources matter, and how hearing directly from young people has helped shape a resource that is both practical and reassuring. Whether you’re a teen, a parent, or part of a healthcare team, this conversation highlights the impact of collaboration and the importance of giving young people a voice in their care.

    Support the show

    Thanks for listening to Beyond the Count
    For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.

    📱 Follow us on social media:
    Instagram: @ITP_ANZ
    Facebook: facebook.com/ITPANZ
    LinkedIn: ITP Australia & New Zealand
    YouTube: @ITPANZ

    🎧 Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode.

    Do you have feedback or a story to share? We’d love to hear from you. Get in touch at info@itpaustralia.org.au

    Show More Show Less
    31 mins
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