24: EDS, MCAS, POTS and the Neurodivergent Link ADHD/ASD: Part 2 of why you feel like sh!t all the time... cover art

24: EDS, MCAS, POTS and the Neurodivergent Link ADHD/ASD: Part 2 of why you feel like sh!t all the time...

24: EDS, MCAS, POTS and the Neurodivergent Link ADHD/ASD: Part 2 of why you feel like sh!t all the time...

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 Are you bendy, itchy, or dizzy all the time? You might be struggling to balance the trifecta of symptoms syndromes…This research episode of The Neurodivergent Report features orthotics researcher Sam Silverman, along with the full @ndreportpod team! Together, we explore the interconnectedness of these often-overlooked chronic conditions and how they disproportionately affect neurodivergent people.Curious what’s inside:Defining MCAS, POTS, and EDS in plain termsWhat the research says about comorbidity and prevalence (who even gets this?)The importance of coordinated and compassionate medical care teamsIf it feels like your body just called it quits one day… YOU’RE NOT ALONE. This episode is for anyone who’s been dismissed, misdiagnosed, or just trying to get through the day in a body that won’t cooperate.Let us know your thoughts @ndreportpod on the socials.However you are able to engage, thanks for being here!Love, Sarah 💜📢 Connect with Us Follow 👉 @ndreportpod Apply to be a guest 🎤⁠⁠⁠ ⁠⁠⁠⁠ndreportpod.com📚 Resources for more on this topic:https://www.mastcellaction.org/resourceshttps://tmsforacure.orghttps://www.mastokids.org/new-page-2https://fourpeakshealthcare.com/patient-resources/https://rarediseases.org/organizations/the-mast-cell-disease-society-inc/https://supertmastcell.orghttps://www.standinguptopots.org/welcome/our-initiativeshttps://www.health.harvard.edu/blog/pots-diagnosing-and-treating-this-dizzying-syndrome-202110062611https://thedysautonomiaproject.org/pots-postural-orthostatic-tachycardia-syndrome/https://www.awarenessforpotsies.org/supportive-resourceshttps://www.potsuk.org/managingpots/📚 Sam’s Research References:Brittain et al. (2023). PT Interventions in G-HSD & hEDS. Disability & Rehabilitation. https://doi.org/10.1080/09638288.2023.2216028Buckner (2014). EDS in acute rehab. J. Prosthetics & Orthotics.Castori (2012). EDS-HT overview. ISRN Dermatology. https://doi.org/10.5402/2012/751768Csecs et al. (2021). Hypermobility & dysautonomia comorbidity. Am J Med Genet C. https://doi.org/10.1002/ajmg.c.31957Csecs & Iodice (2022). Neurodivergence & joint hypermobility. Front Psychiatry. https://doi.org/10.3389/fpsyt.2021.786916Dupuy et al. (2017). Somatosensory orthoses & balance. Front Hum Neurosci. https://doi.org/10.3389/fnhum.2017.00283Halverson et al. (2023). Misdiagnosis & diagnostic delay in hEDS. Genet Med Open. https://doi.org/10.1016/j.gimo.2023.100812Higo et al. (2023). Fabric orthoses case report. Clin Case Rep. https://doi.org/10.1002/ccr3.6821Hsieh et al. (2019). Arch support for kids w/ flatfoot. LWW Journals. LinkJensen et al. (2020). Finger orthoses & function. Sage Journals. https://doi.org/10.1177/0309364620956866Lusardi et al. (2012). Orthotics & Prosthetics in Rehab (3rd ed). Saunders.Pandey et al. (2021). Movement disorders & MSK overlap. Mov Disord Clin Pract. https://doi.org/10.1002/mdc3.13390Russek (2022). Cervical instability in hEDS. JOSPT. https://www.jospt.org/do/10.2519/jospt.blog.20230917Snowdon & Dadla (2023). Allied health views on fabric orthoses. Int J Ther Rehabil. https://doi.org/10.12968/ijtr.2022.0148🔑 Keywords:#Neurodivergent #HypermobileEDS #POTS #MCAS #ChronicIllness #Neurodivergence #InvisibleDisabilities #ADHD #Autism #MentalHealth #MedicalGaslighting #SupportSystems #Neurospicy #SelfAdvocacy #IntersectionalHealth #HormonalHealth #WomenInMedicine #NDreportpod #ResearchPodcast
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