
2. From Diagnosis to Advocacy: A Heart Mom's Perspective with Sarah Michelle Boes
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About this listen
In this conversation, Katelyn sits down with Sarah Michelle Boes, who shares her journey as a mother of a child with congenital heart defects. Sarah discusses the unexpected diagnosis of her daughter, the emotional and psychological challenges she faced, including grief and guilt, and the complexities of navigating the healthcare system as both a parent and a medical professional.
The conversation highlights the importance of advocacy, the realities of living with a heart condition, and the balance between being a caregiver and a healthcare provider. In this conversation, Sarah and Katelyn discuss the complexities of navigating congenital heart disease (CHD) as parents. They emphasize the importance of collaboration with medical teams, the balance between hope and realism, and the emotional challenges faced by families. They also highlight the significance of advocacy and community support in improving outcomes for children with CHD, sharing personal experiences and insights on mental health and resilience.
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This episode was brought to you by the Pivot Ball Change Network.