2. From Diagnosis to Advocacy: A Heart Mom's Perspective with Sarah Michelle Boes cover art

2. From Diagnosis to Advocacy: A Heart Mom's Perspective with Sarah Michelle Boes

2. From Diagnosis to Advocacy: A Heart Mom's Perspective with Sarah Michelle Boes

Listen for free

View show details

About this listen

In this conversation, Katelyn sits down with Sarah Michelle Boes, who shares her journey as a mother of a child with congenital heart defects. Sarah discusses the unexpected diagnosis of her daughter, the emotional and psychological challenges she faced, including grief and guilt, and the complexities of navigating the healthcare system as both a parent and a medical professional.


The conversation highlights the importance of advocacy, the realities of living with a heart condition, and the balance between being a caregiver and a healthcare provider. In this conversation, Sarah and Katelyn discuss the complexities of navigating congenital heart disease (CHD) as parents. They emphasize the importance of collaboration with medical teams, the balance between hope and realism, and the emotional challenges faced by families. They also highlight the significance of advocacy and community support in improving outcomes for children with CHD, sharing personal experiences and insights on mental health and resilience.


Conquering CHD Website


Follow Sarah on Instagram


Follow Sarah on LinkedIn


Sarah’s Website


Let’s Connect!


Follow me on Instagram @tinylittleheartspodcast


Follow me on Substack at Tiny Little Hearts Substack


This episode was brought to you by the Pivot Ball Change Network.

What listeners say about 2. From Diagnosis to Advocacy: A Heart Mom's Perspective with Sarah Michelle Boes

Average Customer Ratings

Reviews - Please select the tabs below to change the source of reviews.

In the spirit of reconciliation, Audible acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respect to their elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.