
How To Navigate Coeliac Disease In Children with The Coeliac Connection Founder & Author of the Ebook 'Surviving the First Year of Childhood Coeliac Disease', Joanne Wynne
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About this listen
A Gluten Free Podcast
Episode 202
My guest on today’s episode is founder of The Coeliac Connection and author of the Ebook “Surviving the first year of childhood coeliac disease”, Joanne Wynne. We’ll talk about Joanne's daughter’s coeliac disease diagnosis, how the diagnosis impacts the family as a whole and tips for parents navigating coeliac disease and gluten free life for their children.
What we’ll cover:
* Introducing Joanne Wynne
* Jo’s daughter’s coeliac disease symptoms
* Jo’s own gluten free journey
* Process to diagnosis and Jo’s struggles with the lack of awareness within the health system
* Jo given incorrect and misleading advice from a health professional prior to her daughter’s coeliac disease diagnosis
* Nurse at hospital caring for son’s broken finger prompting more further testing for Jo’s daughter
* Jo’s daughter’s gluten challenge
* The day of Jo’s daughter’s gastroscopy
* Jo’s daughter’s coeliac disease gastroscopy results
* How Jo’s daughter's coeliac disease diagnosis impacted her family’s life
* How Jo and the family adjusted to accommodating the coeliac disease diagnosis and keeping their daughter safe
* Jo’s son struggling with his sister’s diagnosis
* How the family embraced the coeliac disease diagnosis and worked on their home unit, making the kitchen at home safe, creating picnic lunches, etc
* How Jo’s family support network helped
* Highlighting a quote from the Ebook
* How Jo navigated the emotional toll of coeliac disease with her daughter
* Importance of looking after yourself and loved ones when a coeliac disease diagnosis happens in the family
* Strategies and tips for parents navigating coeliac disease blood tests for their children
* Tips and strategies for helping children get through the gluten challenge
* Preventing cross contamination in the home kitchen
* Gluten free pantry staples
* Labelling and storing gluten and gluten free foods
* How to approach using utensils, toasters, airfryer, chopping boards and pots and pans
* How to approach your child’s coeliac disease at school, parties, playdates, etc
* Communication and advocating at events for your child with coeliac disease
* Navigating play centres for children with coeliac disease
* Advocating when people are willing to learn and understanding but accepting when people don’t want to understand coeliac disease and the gluten free diet
* How Joanne uses coeliac disease and gluten free online resources
* Joanne’s advice on dealing with a new diagnosis for their child
* How to follow and connect with Joanne
Links
Follow Joanne on Instagram & Facebook
Buy Joanne’s Ebook, Surviving The First Year Of Childhood Coeliac Disease: Our Family’s
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