
It Shouldn’t Be This Hard: Advocating Through the System
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About this listen
In this week’s episode of The Autism Mums Podcast, we’re talking about something that so many families raising autistic children will recognise - the exhausting and often disheartening process of dealing with the local authority.
This episode is an honest look at how hard it can be to get what your child needs and how important it is to stay organised, persistent and strong.
Key TakeawaysKeeping on top of it all: Parents and carers are often left chasing reports, updates, and decisions just to keep things moving.
You Can’t Assume Progress is Happening (unfortunately): If you're not following up, you're at risk of falling off the radar.
Options for Your Child: Parents are frequently kept in the dark about available options regarding alternative provision and specialist schools
Travel Expectations Can Be Unrealistic: Specialist schools may be far from home, making logistics overwhelming.
Change is Needed: Better communication, transparency and supportive systems would ease the burden on both families and staff.
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Transcript[00:00:00] Hello and welcome to
the Autism Mums podcast. I'm Victoria. And I'm Natalie. We are two sisters
raising autistic children who know the joy, the challenges, and the everyday
moments. This is a supportive space for honest conversations, practical tips,
shared strength and expert advice. Whether you are celebrating a win, surviving
a meltdown, or just trying to make it through the day, we are right here with
you.
Join us as we share the ups, the downs, and everything in
between parenting autistic children.
Victoria Bennion: In
today's episode, we're gonna talk about the challenges that so many families
face when navigating support through the local authority for their children. We
are gonna talk about the EHCP delays to the mystery surrounding alternative
provision and specialist schools.
If you've ever felt like you're fighting an uphill battle just
to get your child what they need, you're not alone. We are sharing our own [00:01:00] experiences, frustrations, and the lessons
we've learned.
There's much to say. Okay, you go.
Natalie Tealdi: I was
having a think about when we have had to deal with the local authority and it,
and it started off with the EHCP process. And then. There was also alternative
provision as part of that when the school placement was breaking down.
Victoria Bennion: You
can come across dealing with a local authority before you get to the HCP stage.
If your child isn't attending school, , you can be put in touch with inclusion
officer and ask to attend regular meetings. That's what happened with us
Natalie Tealdi: In my
experience it has involved lots of chasing up. So with various reports you need
to gather for the HCP and making sure it's all on track. And just to paint the
picture, when you have a child that's struggling at home, they're struggling
generally with school home they don't yet have.
A diagnosis. So you're trying to learn everything you possibly
can about a [00:02:00] SD and you're dealing
with daily meltdowns. They're being sent home from school. So you've got all of
that going on. And then on top of that, you need to deal with the local
authority and they're really frustrating processes.
Victoria...