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It Shouldn’t Be This Hard: Advocating Through the System

It Shouldn’t Be This Hard: Advocating Through the System

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In this week’s episode of The Autism Mums Podcast, we’re talking about something that so many families raising autistic children will recognise - the exhausting and often disheartening process of dealing with the local authority.

This episode is an honest look at how hard it can be to get what your child needs and how important it is to stay organised, persistent and strong.

Key Takeaways

Keeping on top of it all: Parents and carers are often left chasing reports, updates, and decisions just to keep things moving.

You Can’t Assume Progress is Happening (unfortunately): If you're not following up, you're at risk of falling off the radar.

Options for Your Child: Parents are frequently kept in the dark about available options regarding alternative provision and specialist schools

Travel Expectations Can Be Unrealistic: Specialist schools may be far from home, making logistics overwhelming.

Change is Needed: Better communication, transparency and supportive systems would ease the burden on both families and staff.

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Transcript

[00:00:00] Hello and welcome to

the Autism Mums podcast. I'm Victoria. And I'm Natalie. We are two sisters

raising autistic children who know the joy, the challenges, and the everyday

moments. This is a supportive space for honest conversations, practical tips,

shared strength and expert advice. Whether you are celebrating a win, surviving

a meltdown, or just trying to make it through the day, we are right here with

you.

Join us as we share the ups, the downs, and everything in

between parenting autistic children.

Victoria Bennion: In

today's episode, we're gonna talk about the challenges that so many families

face when navigating support through the local authority for their children. We

are gonna talk about the EHCP delays to the mystery surrounding alternative

provision and specialist schools.

If you've ever felt like you're fighting an uphill battle just

to get your child what they need, you're not alone. We are sharing our own [00:01:00] experiences, frustrations, and the lessons

we've learned.

There's much to say. Okay, you go.


Natalie Tealdi: I was

having a think about when we have had to deal with the local authority and it,

and it started off with the EHCP process. And then. There was also alternative

provision as part of that when the school placement was breaking down.

Victoria Bennion: You

can come across dealing with a local authority before you get to the HCP stage.

If your child isn't attending school, , you can be put in touch with inclusion

officer and ask to attend regular meetings. That's what happened with us

Natalie Tealdi: In my

experience it has involved lots of chasing up. So with various reports you need

to gather for the HCP and making sure it's all on track. And just to paint the

picture, when you have a child that's struggling at home, they're struggling

generally with school home they don't yet have.

A diagnosis. So you're trying to learn everything you possibly

can about a [00:02:00] SD and you're dealing

with daily meltdowns. They're being sent home from school. So you've got all of

that going on. And then on top of that, you need to deal with the local

authority and they're really frustrating processes.

Victoria...

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