Welcome to Season 2, Episode 1 of HS Brotherhood! Your hosts Joey Torre and Parish Armstead are back and kicking off this season with a powerful conversation you won’t want to miss. This week, they’re joined by Stacey Haines, Patient Outreach and Social Media Manager at Rare Patient Voice — a company dedicated to empowering patients and caregivers from rare disease communities to make their voices heard.

In this episode:

• Stacey opens up about her personal journey — from caregiver to patient-advocate — and how that experience shaped her work at Rare Patient Voice.
  
  
• She shares how Rare Patient Voice connects patients and caregivers with research opportunities (including paid surveys and interviews), helping bridge the gap between lived experience and medical development.

This episode brings fresh perspective on giving voice to underserved communities. With Stacey’s lived perspective and Rare Patient Voice’s mission to uplift patient opinion in research, you’ll walk away with a deeper understanding of both the human side of rare disease and the strategic implications for ethical engagement.

Connect & engage
Check out Rare Patient Voice (https://rarepatientvoice.com) to learn more about how patients and caregivers can contribute to research and influence change.

Stay tuned for the rest of Season 2 of HS Brotherhood - subscribe so you get all the latest episodes.

This podcast was made possible by Moonlake.

🎙️ HS Brotherhood Podcast | Episode 7: Mario Otero’s Journey with Clinical Trials

Join us for an inspiring conversation with Mario Otero (follow him on TikTok @motero8111 or Instagram @bama_mario) as he shares his courageous journey participating in clinical trials for Hidradenitis Suppurativa (HS).

In this powerful episode, Mario opens up about the challenges, breakthroughs, and hope he found while contributing to advancements in HS treatment.

As an advocate and warrior, Mario’s story sheds light on the importance of clinical trials in shaping the future of HS care. From navigating uncertainties to finding empowerment through advocacy, his experience is a testament to resilience and community strength.

Tune in to hear how Mario is paving the way for others in the HS Brotherhood and beyond. Your journey matters, and so does your voice. 💪

🔗 Listen now on your favorite podcast platform.

For clinical trial resources, visit hsconnect.org/clinical-trials/

✨ Follow Mario for more of his story: TikTok | Instagram

This podcast was made possible by Moonlake.

Hey fam! 💪 This episode is for anyone who’s ever side-eyed a treadmill or panicked about gym flares. Joey and Parish get REAL about their fitness journeys with HS.

For HS-friendly exercises, check out HS Connect's Healing Space at hsconnect.org/healingspace.

This podcast was made possible by Moonlake.

In this deeply personal and empowering episode of The Brotherhood Podcast, Joey and Parish sit down for a candid, unfiltered conversation about body positivity, self-acceptance, and the lifelong journey of redefining their self-image.

This podcast was made possible by Moonlake.

In this compelling episode of The Brotherhood Podcast, hosts Joey and Parish dive deep into a topic close to their hearts—fatherhood. Join us as they candidly discuss how living with Hidradenitis Suppurativa (HS) has shaped their perspectives on becoming fathers and raising children.

Subscribe to stay updated on upcoming episodes exploring various aspects of life, brotherhood, and living with HS.

This podcast was made possible by Moonlake.

In this raw and deeply personal episode, Joey and Parish peel back the layers of living with Hidradenitis Suppurativa (HS) to confront the silent battle so many warriors face: mental health. From the isolation of flare-ups to the crushing weight of stigma, they share their own journeys through depression, anxiety, and moments when hope felt out of reach.

Trigger Warning: This episode contains candid discussions about mental health struggles, including mentions of suicidal ideation. Listener discretion is advised.

You are not alone. Your story matters. Keep fighting.

This podcast was made possible by Moonlake.

Join hosts Joey Torre and Parish Armstead for a raw, unfiltered conversation about navigating life with Hidradenitis Suppurativa (HS) as men in a world that often misunderstands chronic illness. In this deeply personal episode, Parish opens up about:

• The early struggles of getting diagnosed and feeling isolated.
• Breaking the stigma of HS in male communities.
• How he transformed frustration into advocacy—and what keeps him fighting.

💬 Join the Brotherhood:
Have a question or story about living with HS as a man? Drop it in the comments—we’re all in this together. 💪

👇 RESOURCES & LINKS
🔗 Follow Parish’s advocacy journey: @hsopenwounds
🔗 Follow Joey's advocacy journey: @joeytorre718

🔗 HS Brotherhood Support Group: https://zoom.us/meeting/register/d1fgOjAoTGOmmJDu9J9J8g#/registration

🔗 HSConnect.org/healingspace: Free resources for HS warriors

This podcast was made possible by Moonlake.

In the premiere episode of the Brotherhood Podcast, Parish and Joey dive deep into Joey's inspiring journey living with Hidradenitis Suppurativa. Joey opens up about his personal experiences and the challenges he's faced. From navigating the complexities of daily life to seeking support from family and friends, Joey’s candid storytelling highlights the emotional and physical aspects of living with this chronic condition.

Follow on your favorite podcast platform so you don’t miss the latest episode.

This podcast was made possible by Moonlake.