• Sarc Fighter: Living with Sarcoidosis and other rare diseases

  • By: John Carlin
  • Podcast
Sarc Fighter: Living with Sarcoidosis and other rare diseases cover art

Sarc Fighter: Living with Sarcoidosis and other rare diseases

By: John Carlin
  • Summary

  • Fighting sarcoidosis as well as other rare diseases.
    Copyright 2020 All rights reserved.
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Episodes
  • Episode 114 | Influencer Jonathan Carlin uses YouTube and other social media for an FSR Fundraiser
    May 21 2024

    In Episode 114 of the FSR Sarc Fighter Podcast, a member of the Super Carlin Brothers shares how he is using his significant social media presence to raise money for the Foundation for Sarcoidosis Research. Yes, that's Carlin -- the same name as mine. In this case it's my oldest son Jonathan -- whose YouTube channel has more than 2-million subscribers. Add to that a big presence on Tik Tok, Instagram, podcasts and other platforms and you have a way to reach, well -- a LOT of people. In this episode Jonathan talks about why he wanted to do an FSR fundraiser, how it's going so far - and of course how YOU can help!

    I hope you'll listen in as Jonathan and I share a fun conversation about his idea and what it's like growing up, "Carlin!"

    Show Notes

    Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq

    More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/

    Super Carlin Brothers on YouTube: https://www.youtube.com/supercarlinbrothers

    Jonathan on Instagram: https://www.instagram.com/jonkerlin/

    The Popcorn Culture Podcast: https://www.youtube.com/channel/UCHfIbq9thHPC8yrKjAdJgDA

    Through the Griffen Door Podcast: https://podcasts.apple.com/us/podcast/through-the-griffin-door/id1708293199

    Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/

    Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/

    MORE FROM JOHN:

    Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

    Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier

    The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

    Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

    My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

    email me carlinagency@gmail.com

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    53 mins
  • Episode 113 | Kinevant Sciences makes progress with its drug Namilumab
    May 6 2024

    In Episode 113 of the FSR Sarc Fighter podcast, John is joined by Kinevant Sciences CEO Bill Gerhart and the Senior Director of Patient Advocacy Rayne Rodgers. The team at Kinevant is excited to share the news of the progress they are making with their drug, Namilumab as a potential new therapy for sarcoidosis patients.

    SHOW NOTES

    Kinevant Sciences: https://kinevant.com/

    Namilumab: https://kinevant.com/research/

    The original Interview with Bill and Rayne: https://beatsarc.podbean.com/e/episode-69-kinevant-is-working-on-namilumab-a-potential-new-drug-for-sarcoidosis/

    Donate to Royce and Cycle4sarc: https://stopsarcoidosis.rallybound.org/Team/View/172803/Cycle4Sarc

    Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/

    Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/

    MORE FROM JOHN:

    Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

    Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier

    The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

    Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

    My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

    email me carlinagency@gmail.com

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    1 hr and 3 mins
  • Episode 112 | aTyr is getting closer to a new drug to fight sarcoidosis.
    Apr 22 2024

    Joining me today on the FSr Sarc Fighter Podcast is Sanjay Shukla, CEO of aTyr Pharma. Sanjay returns to the podcast with a promising update on Efzofitimod, the most promising candidate to become the first drug developed specifically to fight sarcoidosis. Sanjay joins the podcast from Brazil, just one of the countries around the world, where the drug is in clinical trials. He will discuss how much more testing is needed and when the drug could become available to sarcoidosis patients.

    Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq

    More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/

    Donate to Royce and Cycle4sarc: https://stopsarcoidosis.rallybound.org/Team/View/172803/Cycle4Sarc

    Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/

    Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/

    MORE FROM JOHN:

    Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

    Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier

    The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

    Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

    My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

    email me carlinagency@gmail.com

    Show More Show Less
    52 mins

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