Showing results by author "The Aplastic Anaemia Trust PNH Support DC Action Fanconi Hope SDS UK and CAN." in All Categories
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Rare Voices Podcast
- By: The Aplastic Anaemia Trust PNH Support DC Action Fanconi Hope SDS UK and CAN.
- Original Recording
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What’s it like living with a rare blood or bone marrow disorder? Or parenting a child who is? This brand new podcast invites people living with these conditions to share their perspectives and advice for those facing similar challenges. How do you carry on feeling positive when someone you know dies as a result of the same condition? How do you explain why your child can’t go to a party? How do you speak up at the hospital when you think doctors need to do something different? Stories of strength and real, practical advice for super rare people and families. -------------------------------...
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