Showing results by author "Melody Joy Paine" in All Categories
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Rare Rebels™
- By: Melody Joy Paine
- Original Recording
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The Rare Rebels™ Podcast shares unscripted conversations with patients, caregivers, advocates, and researchers who are changing the future of rare disease. These aren’t polished soundbites — they’re real voices from the front lines, revealing the humanity, heartbreak, and hope woven into the rare disease experience.Because change doesn’t happen through statistics alone — it happens through connection.Hosted by award-winning storyteller and advocate Melody Joy Paine, Rare Rebels™ brings lived experiences to the forefront, bridging gaps between families, researchers, nonprofits, ...
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