Showing titles in People with Disabilities

This powerful, honest, hilarious and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys and the unseen realities of being a disabled woman. From navigating the worlds of education and work, dating and friendship; to managing care; contemplating motherhood; and learning to accept your body against a pervasive narrative that it is somehow broken and in need of fixing, The View From Down Here shines a light on what it really means to move through the world as a disabled woman.

Type 1 diabetic, fitness fanatic, dancing queen, Canasta champion; only some of the tags used to describe Colleen Ashby. Daughter, sister to five brothers, wife, and mother of three sons further define Colleen. Add to that, she is a heart transplant recipient who is now visually impaired, and you realize there is much more to learn.

Il tempo ha un suono diverso quando sai che sta per finire. Una mamma lo sa, lo sente. Gli ultimi mesi sono volati, scanditi da visite mediche, nuove sfide e momenti preziosi: Cesare ascolta in loop le sue canzoni preferite, esprime desideri. Vuole andare al parco, fare un giro in moto, poi in barca a vela. E mentre Valentina cerca un modo per restare aggrappata all’amore, ai ricordi di ogni risata, il suo Cece si sta spegnendo.

Wanting to have a baby my whole life, I always assumed I would get the opportunity. But when I received the diagnosis of an incurable disease, that dream faded into a distant memory. When I fell in love, got married, and then pregnant a few years later, everyone questioned if I would get my dream or just be lucky to survive.

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage?

It’s 1970, and Jerry Walker is six years old. His consciousness revolves around being a member of a church whose beliefs he finds not only confusing but terrifying. Composed of a hodgepodge of requirements and restrictions—including a prohibition against doctors and hospitals—the underpinning tenet of Herbert W. Armstrong’s Worldwide Church of God was that its members were divinely chosen and all others would soon perish in rivers of flames.

In the summer of 2019, journalist Melissa Blake penned an op-ed for CNN Opinion. A conservative pundit caught wind of it, mentioning Blake’s work in a YouTube video. What happened next is equal parts a searing view into society, how we collectively view and treat disabled people, and the making of an advocate. After a troll said that Blake should be banned from posting pictures of herself, she took to Twitter and defiantly posted three smiling selfies, all taken during a lovely vacation in the Big Apple. Now, in her manifesto, Beautiful People, Blake shares her truths about disability.

On Halloween day 1990, Sterling Krysler—husband, father, pilot, newly arrived in Hawai'i—suffered a catastrophic spinal cord injury while body surfing at a local beach. Ever the optimist, Sterling accepted the life-changing injury becoming advocate and inspiration to many in the "disability community." This is a family-centered story brimming with love, joy, and humor. This is his story—before and after.

Love for a Deaf Rebel introduces listeners to a vivacious Canadian woman who was born into a silent world and with the foundation for schizophrenia. With pathos and nostalgia, the author recounts his roller-coaster ride with Pearl, a vivacious deaf maverick, who, unknown to him, had paranoid schizophrenia. We follow their encounters through actual notes written before Derrick learns sign language; we go on their motorcycle ride to Mexico and Guatemala; we watch as the happy couple moves to Bowen Island, a British Columbia community with just three paved roads.

Anna grew up in a house that was loving, even if her mum was ‘a little eccentric’. They knew to keep things clean, to stay quiet, and to look the other way when things started to get ‘a bit much for your mum’. It’s only when her mother reaches her 70s and Anna has a family of her own, that the cracks really start to appear. More manic. More irrational. More detached from the world. And when her father, the man who has calmed and cajoled her mother through her entire life is diagnosed with cancer, the whole world turns upside down.

Author Eiren Caffall is the inheritor of a family legacy of two hundred years of genetic kidney disease and the mother of a child who may inherit that legacy. A literary memoir on loss, chronic illness, and generational healing, Caffall’s The Mourner’s Bestiary is also a meditation on grief and survival told through the stories of animals in two collapsing marine ecosystems—the Gulf of Maine and the Long Island Sound—and the lives of a family facing a life-threatening illness on their shores.

The moving true story of a little girl with Asperger syndrome, controlled and abused by the one person she called her friend. Taylor had always struggled to make friends - she felt 'different'. Taylor never knew her father, and her mother wasn't around much. She just didn't understand people and was alone and scared most of the time. That was until, aged just 11, an older married man called Tom befriended her. She loved having someone who would talk to her, listen to her - a protector. But when he moved away a few months later, she was easy prey.

Abdel Sellou and Philippe Pozzo di Borgo were two people marginalised by society: Sellou a wisecracking, unemployed immigrant, just out on parole; Pozzo a man born to wealth and privilege, recently paralysed from the neck down after a paragliding accident. How they came to help each other, and the unlikely friendship that became a lifeline for them both, is an uplifting story that's now been told and retold around the world.

Sarah Merriman is just like any other urbane young woman in her twenties... She has a job in a Central London hotel, a boyfriend, commutes to work on the Tube, eats out, goes to films and theatre... This is all the more remarkable (though not to her) because Sarah was born with Down's Syndrome. Her parents having no prior inkling, it came as a huge shock to them that they now had a daughter with a disability. In 1999 her father Andy wrote a frank and moving book, A Minor Adjustment, about the challenge of her early years. Now he continues with this inspirational story.

Learn about narcolepsy and one persons struggle living with the disease before and after diagnosis. Have you ever woke up and not known where you were or how you got their? You may have narcolepsy. Have you ever laughed so hysterically you fell down motionless? You may have cataplexy. Have you ever been accused of being drunk or on drugs, even though you know you were not?

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

With both clean essays and jagged diary entries, this memoir tells the story of one person's progress through disability and volunteering, self-exploration, and discovery, and snippets of growth in the contemplative writing process itself. Ultimately, the question "Can I work?" is answered with the passage of time. A challenging but uplifting piece of writing, spanning over a half a year of lyric prose with a touch of poetry.

When Jeremy and Emily Freeman’s teenage son Caleb was in a devastating car accident, doctors gave him a 10 percent chance of survival. Fear of losing a child was all too fresh for the Freemans—their seven-year-old son, Trey, had died just four years earlier from a genetic immunodeficiency. But God. In #butGod Jeremy shares the incredible story of Caleb’s recovery, the darkness that nearly overtook their family in the waiting, and the #butGod movement that captured the prayers of Christians around the world.

One fine April day, Mary Ann Kenny’s husband died suddenly while jogging near their family home. In the months that followed, Mary Ann – who had no history of mental illness – began suffering from depression, and then from a terrifying succession of physical and psychological symptoms, including the delusion that her young children had been harmed by her medications.

Graham Hale Gardner died before turning 23 and never learned to walk or speak due to severe cerebral palsy complicated by epilepsy. Yet he left a legacy of love and compassion that deeply moved scores of people from widely different backgrounds. Graham’s story, written through the eyes of his father, speaks of the enormous legacy left by a boy who never spoke. A story that raises provocative questions about the “invisible lines of connection” that make us human.