Showing titles in People with Disabilities

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.

How do you build a life when all that you know is changing? How do you conceive of love when you can no longer recognise those who mean the most to you? A phenomenal memoir, Somebody I Used to Know is both a heart-rending tribute to the woman Wendy Mitchell once was, and a brave affirmation of the woman dementia has seen her become.

What is intimacy? More than sex, more than romantic love, the pieces in this stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. Explorations of caregiving, community, access, and friendship offer us alternative ways of thinking about the connections we form with others—a vital reimagining in an era when forced physical distance is at times a necessary norm.

Diagnosed with cerebral palsy as a child, Kyle Pease had grown up supporting his athlete brothers Brent and Evan from the sidelines. While his condition limited his ability to play sports, it didn't dampen Kyle's passion for them, nor did it stop the Pease family from including Kyle in various excursions. From rolling his wheelchair up Bridal Veil Falls in Yosemite National Park to zipping down Colorado snow slopes, there was never a dull moment with the Pease brothers. Where there was a wheel, there was a way to adventure.

Henry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who has autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now-famous theory of Intense World Syndrome.

This is the remarkable and inspirational story of Oksana Masters, who was born with radiation-induced birth defects and suffered appalling abuse as an orphan, before being adopted and moving to the US, where she went on to triumph over her challenges to win ten Paralympic medals in four different sports.

Drawing insights from the hard-won wisdom of disabled folks who've forged difference into fierce and luminous cultural dissent, Belser offers fresh and unexpected interpretations of familiar biblical stories, showing how disability wisdom can guide us all toward a powerful reckoning with the complexities of the flesh. She talks back to biblical commentators who traffic in disability stigma and shame, challenging interpretations that demean disabled people and diminish the vitality of disabled lives.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

Blind from birth, Graeme Innes was blessed with a family who refused to view his blindness as a handicap, instilling in him a belief in his own abilities; blessed with a determination to persevere. After a long and successful career as a lawyer, company director and Human Rights Commissioner, Graeme has written his story. Finding a Way shares his memories of love and support, challenges, failures and overcoming the discrimination so many people with disabilities face.

Rachel Kolb was born profoundly deaf the same year that the Americans with Disabilities Act was passed, and she grew up as part of the first generation of deaf people with legal rights to accessibility services. Still, from a young age, she contorted herself to expectations set by a world that prioritizes hearing people. So even while she found clarity and meaning in American Sign Language (ASL) and written literature, she learned to speak through speech therapy and to piece together missing sounds through lipreading and an eventual cochlear implant.

Sam always knew he was starting life on the back foot. When his parents split, Sam, his mother and his brother had to learn to survive in a world not built for single-parent families. Add to that Sam's diagnosis with a form of dwarfism and the odds seemed stacked against them. As surgeons kept breaking and resetting Sam's legs in attempts to keep him walking, disability and poverty collided, and it took all the family's strength not to crumple in the impact. In Broke, lawyer and disability advocate Sam Drummond weaves a poignant, stirring and deeply compassionate tale of life on the fringes.

Jonathan Mooney blends anecdote, expertise, and memoir to present a new mode of thinking about how we live and learn - individually, uniquely, and with advantages and upshots to every type of brain and body. He explores the toll that being not normal takes on kids and adults when they’re trapped in environments that label them, shame them, and tell them, even in subtle ways, that they are the problem.

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

The moving true story of a little girl with Asperger syndrome, controlled and abused by the one person she called her friend. Taylor had always struggled to make friends - she felt 'different'. Taylor never knew her father, and her mother wasn't around much. She just didn't understand people and was alone and scared most of the time. That was until, aged just 11, an older married man called Tom befriended her. She loved having someone who would talk to her, listen to her - a protector. But when he moved away a few months later, she was easy prey.

Get ready to embrace your inner warrior with Kelly-Anne Kerley's real and raw story of resilience and HOPE. Dive into her empowering story, celebrating her strength and transformation—because conquering adversity needs to be showcased with laughter and tears.

You will laugh and cry when you listen to how Patti Smith lovingly and honestly reveals transformative lessons gleaned from forty-plus years of caring for (and being tutored by) her son, Christopher. His diagnosis as a baby with Down Syndrome at first tilted her world off-axis, only to reveal itself to be the thing that actually set her worldview at the exact right angle.

On January 21, 2008, a routine medical procedure left Mallory paralyzed from her waist down. Less than two years later, Mallory had broken eight world records, and by the 2012 Paralympic Games, she held fifteen world records and thirty-four American records. Two years after that, a devastating fall severely damaged her left arm. But despite all of the hardships that Mallory faced, she was sure about one thing: she refused to give up.

Just like fox, Heidi has lived on the outer. The ‘official record’ of her life has been her mental health record: primary diagnosis – schizoaffective; comorbidity – major depression, juvenile autism and not her own memories. This is the living, breathing version of Heidi’s mental health file that psych wards, doctors, mental health staff or rehab workers know little about or worse, use as evidence of diagnoses. This is Heidi’s account of what happened, shadowed by the story of a fox who knows he'll never belong.

Most people encounter disability at some point in their lives, either in their own bodies or through a friend or loved one. Faith leaders, sacred texts, and members of religious communities frequently offer religious teachings and metaphors as explanation for the presence of disability, but rarely do we hear the voices of people living with disabilities reflecting on their experiences of God, faith, or religious life.