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The FND Podcast

The FND Podcast

By: Odettecreates Detty Odette Placido
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About this listen

 Hi, I’m Detty — a mum, a wife, a crocheter, a tea-lover, and someone living with Functional Neurological Disorder (FND). I created The FND Podcast as a place to have real, honest chats about life with this condition — the parts that are scary, the parts that are frustrating, and the parts that are still full of light. Here, you’ll hear from people with lived experience, carers, professionals, and advocates who all bring their stories, their insights, and their heart to the table. We talk about what it’s like to be diagnosed with FND, what recovery can really look like, how to manage flare-ups, navigate work, raise a family, and just keep showing up — one breath, one step, one day at a time. This podcast isn’t about perfection. It’s about connection. It’s about making space for every part of this journey — especially the parts that often get left out of the conversation. Whether you’re living with FND, supporting someone who is, or just trying to understand it better — you’re welcome here. So, grab a cuppa, get comfy, and join me for conversations that are warm, raw, and real. You’re not alone. 💛 Detty We are happy to announce that we are FND AUS Podcast series. Please support: FND AUSTRALIA SUPPORT SERVICES INC: www.fndaus.org.au Together lets talk FND.2020 thefndpodcastwithdetty Alternative & Complementary Medicine Hygiene & Healthy Living Psychology Psychology & Mental Health
Episodes
  • FND advocacy and find your voice: Brads story: The FND Podcast

    FND advocacy and find your voice: Brads story: The FND Podcast
    Aug 1 2025
    What happens when your body stops functioning? And the neurologist simply says " Deal with it".. Suggesting its all in your head?In this powerful episode, Brad shares his personal journey from collapse and confusion to finding his voice in the FND community. Diagnosed with functional Neurological disorder after a barrage of symptoms and no clear answers, Brad was left to navigate the system alone. But instead of staying silent he took action:We talk about*The moment it all started* The trauma of misdiagnosis and dismissal*Brads current petition to improve FND careThe emotional Toll of FND and how it reshapes identityThe importance of community support and speaking outFollow Brad:Youtube : @unshakenbradInstagram: @fndwarrior2024Tiktok: @unshakenbradClick here for Brads current petition: https://petition.parliament.uk/petitions/727063?utm_medium=social&utm_source=heylink.meOther current petitions that are on Change.orgALSO if you are in NZ or just wanting to find out more about FND FND AWARE NZMusic by soundstripe licensed to be used on this podcast: Nu Alkemist : At a glanceAlsever : Paper TreatsMatt Wigton: Thoughts are freeMap zoom in Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community. FND AUSTRALIAN SUPPORT SERVICES A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. IF you would like to support FND Australia Services and would like to have a look at some merchandise click here FND ACTION : https://www.fndaction.org.uk FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND GUIDE. A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation FND DIMENSIONS FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit click here to have a lookThe FND SocietyThe FND Society is a welcoming and informative space created by people with FND for people with FND. It offers a growing range of resources — including guides, videos, interviews, real-life stories, and practical support — to help you understand your condition, connect with others, and feel empowered in your journey.It’s not just information — it’s community. It’s validation. And it’s a reminder that you’re not alone.they are also a great resource into learning more about FND.https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptomInformation on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfhttps://fndportal.org/ Health Professionals who want to learn about FND, and recommending to learn and follow or if you just want to learn more about FND:Haseel Bhatt Neuro Physiotherapy Instagram: Functionalneurologicaldisorder Website: Neurology Rehab ( Click to go to website) For training about FND especially if you are a health professional or allied health please check this website out for courses available Jason Kreuzman: Peadiatric Occupational Therapist FNDInstagram: FND_OTWebsite: RewireOT (click here to go to website)A great resource for carers, families and health professionals who want to learn about FND also register your interest in a course for FND Nada! A MUST FOLLOWInstagram: Fnd_revolutionPodcast: FEM AND STEM podcast (click here to listen)Youtube: FND REVOLUTION TVShe is a brilliant FND advocate and warrior. I cannot recommend her enough please follow her, subscribe and watch. The FND Podcast song of the week:Fix you by Coldplayhttps://open.spotify.com/track/7LVHVU3tWfcxj5aiPFEW4Q?si=c2eecb790ac24dfdIt's a song that has got me through a couple of times XOHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein FND is not fake or Malingering Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be ...
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    39 mins
  • Talking to Jason Kreuzman Pediatric FND and OT: The FND Podcast

    Talking to Jason Kreuzman Pediatric FND and OT: The FND Podcast
    Jul 24 2025
    In this insightful and compassionate episode of The FND Podcast, Detty is joined by Jason Kreuzman, a pediatric occupational therapist based in St. Louis, Missouri, who specialises in treating children with Functional Neurological Disorder (FND).Together, they explore what occupational therapy really is, how it differs from physiotherapy, and the powerful role it can play in helping children and teens with FND rebuild their lives — one meaningful activity at a time. Jason shares how he adapts therapy for young people, how to support kids returning to school, and why building confidence and safety is key to long-term recovery.Whether you’re a parent of a newly diagnosed child, a healthcare professional wanting to understand FND better, or someone looking for practical tools and real hope, this episode is full of heart, helpful insights, and supportive guidance. Topics covered:
– What occupational therapy looks like for FND
– Explaining FND to children in age-appropriate ways
– Supporting school transitions and daily life
– Creating personalised care plans for families
– Raising awareness in the healthcare system
– Free resources now available for pediatric FND careThis one’s a must-listen for families, carers, educators, and therapists — and a powerful reminder that support for kids with FND does exist.This Episodes notes:Follow Jason Kruzeman on instagram @fnd_ot also click here to have a good look at this amazing new FND resource www.rewireot.comAll resources mentioned in the podcast can be accessed through this new website. Also check out www.fndsociety.org they are also a great resource into learning more about FND. Music used in this Podcast is from Soundstripe : licensed for use Spring Cleaning by LunerahNobody by EllisanWe know by Aaron Sprinkle Just like me by Thruline Light the way by Ian Kelosky Map zoom out Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community. FND AUSTRALIAN SUPPORT SERVICES :https://fndaus.org.au/fnd-symptoms/ A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. IF you would like to support FND Australia Services and would like to have a look at some merchandise click here FND ACTION : https://www.fndaction.org.uk FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND GUIDE. :https://neurosymptoms.org/en/ A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation FND DIMENSIONS: http://fnddimensions.org/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit click here to have a look https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf The FND Podcast song of the week: Stronger by Kelly Clarkson Just a really uplifting song Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein The published research Paper on FND by Haseel Bhatt FND is not fake or Malingering Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have.
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    28 mins
  • The JJSegment : Working with FND and writing a book : The FND Podcast

    The JJSegment : Working with FND and writing a book : The FND Podcast
    Jul 17 2025
    🎙️ The JJ Segment: Catching Up with Jess – Working, Writing, and Living with FNDIn this deeply honest and joyfully heartfelt episode of The FND Podcast, Detty sits down with the wonderful Jess for a long-overdue catch-up on the JJ Segment. From moving states, to getting married, to navigating life with FND while diving headfirst into a blue-collar job — Jess shares it all with her trademark humour, grit, and glowing resilience. Together, we unpack what it’s really like returning to work with Functional Neurological Disorder, from workplace seizures and flare-ups to pacing, planning, and the importance of telling your employer. Jess opens up about her journey from overdoing it to finding a more manageable balance — and how she's learned to adapt rather than fight her FND. But that’s not all — Jess is also a published author! We chat about her newest fantasy release "Woman of Wolves", her passion for storytelling, and how she balances creative life with chronic illness. You’ll laugh, nod, maybe even tear up — and definitely walk away feeling inspired. ✨ In this episode:– Jess’s journey with FND & employment– Coping with seizures at work– The emotional evolution of living with FND– Why communication with employers matters– Writing through chronic illness– Creating a fantasy world… and lifting 3 tonnes of flour a day?! 💪– The gift of self-acceptance and finding your pace 📚 Want to support a fellow FND warrior? Check out Jess’s books on Amazon and follow her on TikTok @jessmcfarlane A massive thank you to Jess for being so open and shining your light. And to our listeners: you’re not alone. Your journey with FND is your own, but we’re right here beside you. Stay safe, love hard, and peace — see you on the flip side 💛To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone. Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes.This Episodes notes:Job Access : the guide to disability employment : click here for more detailsDisability support services Australia in Victoria click here for more detailsEmployment programs: disability *Aus government. Returning back to work presentation on FND Australia Support Services Channel : Click here for more detailsTransitioning from school to work with a disability: click here for more detailsIf you feel like you would like to Volunteer in Australia : click here for more detailsCaitlins story with FND and work :If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more detailsNote: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that I've found so far however there is more out there : For USA from what I could see : Job Training and programs for people with a disabilityAmericans with Disability Act : protecting people with disabilities from discriminationOffice for disability employment policy click hereFor Canada: Canadian Association for Supported Employment click hereCanada employment Strategy for Canadians with disabilities click hereFor England: Employment disability rights click here: Careers and work for disabled people from Disability rights UK click hereAbility Net : Information about Disability and Employment Music used in this Podcast is from Soundstripe : licensed for useFlowstate by PalaThis and That by Nu Alkemi$tLife in Pastels by Matt WigtonMap zoom outThankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.FND AUSTRALIAN SUPPORT SERVICES :https://fndaus.org.au/fnd-symptoms/A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.IF you would like to support FND Australia Services and would like to have a look at some merchandise click hereFND ACTION : https://www.fndaction.org.ukFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.FND GUIDE. :https://neurosymptoms.org/en/A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationFND DIMENSIONS: http://fnddimensions.org/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the ...
    Show More Show Less
    37 mins
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