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FND advocacy and find your voice: Brads story: The FND Podcast

FND advocacy and find your voice: Brads story: The FND Podcast

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 What happens when your body stops functioning? And the neurologist simply says " Deal with it".. Suggesting its all in your head?In this powerful episode, Brad shares his personal journey from collapse and confusion to finding his voice in the FND community. Diagnosed with functional Neurological disorder after a barrage of symptoms and no clear answers, Brad was left to navigate the system alone. But instead of staying silent he took action:We talk about*The moment it all started* The trauma of misdiagnosis and dismissal*Brads current petition to improve FND careThe emotional Toll of FND and how it reshapes identityThe importance of community support and speaking outFollow Brad:Youtube : @unshakenbradInstagram: @fndwarrior2024Tiktok: @unshakenbradClick here for Brads current petition: https://petition.parliament.uk/petitions/727063?utm_medium=social&utm_source=heylink.meOther current petitions that are on Change.orgALSO if you are in NZ or just wanting to find out more about FND FND AWARE NZMusic by soundstripe licensed to be used on this podcast: Nu Alkemist : At a glanceAlsever : Paper TreatsMatt Wigton: Thoughts are freeMap zoom in Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community. FND AUSTRALIAN SUPPORT SERVICES A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. IF you would like to support FND Australia Services and would like to have a look at some merchandise click here FND ACTION : https://www.fndaction.org.uk FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND GUIDE. A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation FND DIMENSIONS FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit click here to have a lookThe FND SocietyThe FND Society is a welcoming and informative space created by people with FND for people with FND. It offers a growing range of resources — including guides, videos, interviews, real-life stories, and practical support — to help you understand your condition, connect with others, and feel empowered in your journey.It’s not just information — it’s community. It’s validation. And it’s a reminder that you’re not alone.they are also a great resource into learning more about FND.https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptomInformation on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfhttps://fndportal.org/ Health Professionals who want to learn about FND, and recommending to learn and follow or if you just want to learn more about FND:Haseel Bhatt Neuro Physiotherapy Instagram: Functionalneurologicaldisorder Website: Neurology Rehab ( Click to go to website) For training about FND especially if you are a health professional or allied health please check this website out for courses available Jason Kreuzman: Peadiatric Occupational Therapist FNDInstagram: FND_OTWebsite: RewireOT (click here to go to website)A great resource for carers, families and health professionals who want to learn about FND also register your interest in a course for FND Nada! A MUST FOLLOWInstagram: Fnd_revolutionPodcast: FEM AND STEM podcast (click here to listen)Youtube: FND REVOLUTION TVShe is a brilliant FND advocate and warrior. I cannot recommend her enough please follow her, subscribe and watch. The FND Podcast song of the week:Fix you by Coldplayhttps://open.spotify.com/track/7LVHVU3tWfcxj5aiPFEW4Q?si=c2eecb790ac24dfdIt's a song that has got me through a couple of times XOHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein FND is not fake or Malingering Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be ...
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