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Go Shout Love Podcast

Go Shout Love Podcast

By: Go Shout Love
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About this listen

 Go Shout Love tells the stories of amazing kids on rare medical journeys and sells creative apparel inspired by the kids to benefit their families. In the GSL podcast, we interview the parents of these amazing kids and offer other conversations designed to inspire and encourage anyone who listens.Copyright Go Shout Love Hygiene & Healthy Living
Episodes
  • 131 - Catch Your Breath and Look Around: Meet Ellie

    131 - Catch Your Breath and Look Around: Meet Ellie
    May 14 2024
    This month, we're featuring Ellie, a four-year-old from Litchfield, New Hampshire. She loves school, music, dancing,and, yes, horseback riding! Ellie has been diagnosed with a very rare condition called Rubinstein-Taybi syndrome.

    There's too much to cover about her diagnosis in a brief format, so we will let Taylor, Ellie's mother, explain it in more detail.We're incredibly grateful to Taylor for allowing us into their lives and sharing Ellie's story – from the early stages of the diagnosis to her personality and her relationship with her two-year-old brother.

    You may not get to meet Ellie in person,but you'll fall in love with her just by hearing about her.
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    1 hr and 15 mins
  • 130 - Together is the Best Adventure - Meet Arlee and Abel

    130 - Together is the Best Adventure - Meet Arlee and Abel
    Apr 9 2024
    Say hello to Arlee and Abel!👋you

    Arlee (7) and Abel (3) are from Gregory, Michigan where they enjoy spending lots of time outdoors!

    Their life, like any other, is filled with moments of joy, laughter, and love. Yet, their journey is also marked by resilience, strength, and the unyielding bond that holds them together, especially in the face of challenges posed by a rare condition called Friedreich's Ataxia.
    Throughout April, we’ll be shouting love for these two to help raise awareness and financial support for a reliable vehicle to transport them to and from appointments in Philadelphia.


    We invite you to listen to a conversation with their parents, Becca and Myles.
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    42 mins
  • 129 - Good Time Only - Meet Eli

    129 - Good Time Only - Meet Eli
    Mar 12 2024
    Shout love for Elias!

    Elias, lovingly known as Eli, is a seven-year-old kid from Bloomfield, Indiana who loves arts and crafts, playing outside, and sweet treats!

    In today's episode we are talking with the parents to Eli and they are going to walk us through everything from Eli's personality, what he likes what he doesn’t like…and of course his medical journey from day one until now.

    Throughout March, we’ll be shouting love for Eli to raise awareness for his rare medical journey with 9p24.3 duplication, aspiration/dysphagia, and autism.
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    1 hr and 4 mins
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