131 - Catch Your Breath and Look Around: Meet Ellie cover art

131 - Catch Your Breath and Look Around: Meet Ellie

131 - Catch Your Breath and Look Around: Meet Ellie

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 This month, we're featuring Ellie, a four-year-old from Litchfield, New Hampshire. She loves school, music, dancing,and, yes, horseback riding! Ellie has been diagnosed with a very rare condition called Rubinstein-Taybi syndrome.

There's too much to cover about her diagnosis in a brief format, so we will let Taylor, Ellie's mother, explain it in more detail.We're incredibly grateful to Taylor for allowing us into their lives and sharing Ellie's story – from the early stages of the diagnosis to her personality and her relationship with her two-year-old brother.

You may not get to meet Ellie in person,but you'll fall in love with her just by hearing about her.
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