• How AI could advance research into diseases like ALS - Dr. Irene Rombel on the ALS United Mid-Atlantic GOALS Podcast #38
    Nov 4 2025

    Dr. Irene Rombel is the CEO, President, & Co-Founder of BioCurie. In this ALS United Mid-Atlantic GOALS Podcast, she talks about how AI can be a tool to advance research into diseases like ALS. Dr. Rombel also talks about how AI can reduce costs of research so more companies can invest in rare diseases, what therapies are working now, and what gives her hope in the future of medicine. Learn more about her work at www.biocurie.ai

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

    ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    35 mins
  • ALS United Mid-Atlantic GOALS Podcast 37 with Alisa Brownlee and AMRAMP on Ramping and ALS
    Oct 28 2025

    Jamie from AMRAMP joins Alisa Brownlee on the ALS United Mid-Atlantic GOALS Podcast to discuss our ramping program and how it benefits people with ALS.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

    ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    18 mins
  • Genetic Counseling and ALS - ALS United Mid-Atlantic GOALS Podcast 36 with Courtney Fitch
    Oct 21 2025

    Courtney Fitch, MS, CGC, is a Certified/Licensed Genetic Counselor at the ALS Treatment Center at Lehigh Valley Health Network. In this ALS United Mid-Atlantic GOALS Podcast, Courtney explains the role of a Genetic Counselor, how she works with the clinic team, advances in genetic understanding and science, and offering support to ALS patients and families.

    The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    35 mins
  • ALS United Mid-Atlantic GOALS Podcast 35 with Chloe and Arianna on ALS and AAC
    Oct 14 2025

    Chloe LaBella, SLP-CCC and Arianna Jarosinski, M.S. SLP-CCC join the ALS United Mid-Atlantic GOALS Podcast to discuss their work Hackensack Meridian Health Jersey Shore University Medical Center on Augmentative and Alternative Communication for people with ALS.

    In this podcast discussion, Chloe and Arianna share their expertise on AAC, how they introduce the concept of communication devices to a person diagnosed with ALS, advances in technology, and their collaboration with Dr. Mary Sedarous and with the resources at ALS United Mid-Atlantic.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org Learn more about ALS care at Hackensack Meridian Health at: https://www.hackensackmeridianhealth.org/en/services/neurosciences/amyotrophic-lateral-sclerosis-als

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    43 mins
  • ALS United Mid-Atlantic GOALS Podcast 34 with Mary Grams from ALS United North Carolina
    Oct 7 2025

    Mary Grams is the new Executive Director at ALS United North Carolina. In this GOALS Podcast, Mary discusses her family's ALS story, progress in ALS care, the extensive research programs in North Carolina, and how the ALS United network collaborates to advance the ALS cause. To learn more about her work, visit www.alsnc.org

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    28 mins
  • ALS United Mid-Atlantic GOALS Podcast 33 with Stephanie Dobak on ALS and Nutrition
    Sep 30 2025

    Stephanie Dobak, MS, RD, LDN, CNSC, is a clinical dietitian at the Jefferson Weinberg ALS Center in Philadelphia, Pennsylvania. In this podcast episode, Stephanie talks with Alisa Brownlee about important questions for people with ALS and their caregivers regarding nutrition and diet.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    36 mins
  • ALS United Mid-Atlantic GOALS Podcast 32 with Gary Goldstein on ALS Advocacy
    Sep 23 2025

    Gary Goldstein joins our ALS United Mid-Atlantic GOALS Podcast to discuss his role in ALS advocacy. In this episode, Gary talks about his wife Paula's battle with ALS, successes through advocacy, his Named Fund for Paula, and being a Visiting Volunteer.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    34 mins
  • ALS United Mid-Atlantic GOALS Podcast 31 with Annette Miller, RN
    Sep 16 2025

    ALS United Mid-Atlantic nurse Annette Miller, RN, joins the GOALS Podcast to discuss her work and experience caring for people with ALS. In this episode, Annette talks about how her role as a nurse has evolved, how she guides people through the challenges of ALS, the services offered through ALS United Mid-Atlantic, and the growing reputation of the ALS Treatment Center at Penn State Health Hershey Medical Center.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    34 mins