• Episode 66 ~ Dravet Syndrome Foundation
    Apr 23 2026

    Katie Sale, Executive Director of the American Brain Coalition, sits down with Mary Anne Meskis, CEO of the Dravet Syndrome Foundation, and Shannon Cloud, the Foundation's Patient Advocacy Director, for a conversation on the origins and impact of DSF. They discuss why the organization was founded, the critical advocacy work it leads, and the resources it provides to support patients and families affected by Dravet syndrome.

    Show More Show Less
    21 mins
  • Episode 65 ~ PWN4PWN
    Mar 25 2026

    In this episode, ABC Executive Director Katie Sale sits down with Jane Powell, CEO & Executive Director, and Alejandro Bruner-Solas, Program Manager from PWN4PWN, for an inspiring conversation about advocacy, community, and living with narcolepsy. Together, they explore empowering individuals through peer support, workforce development, and inclusive programming, while sharing personal insights on navigating life with sleep disorders.

    Show More Show Less
    41 mins
  • Episode 64 ~ Alliance to Cure Cavernous Malformation
    Mar 4 2026

    In this episode, Katie Sale, Executive Director of the American Brain Coalition, is joined by Kris Corbett, RN, author of Bravely Bleeding and person with lived experience (PWLE) of Cerebral Cavernous Angioma; and Cornelia (Connie) Lee, PsyD, CEO of the Alliance to Cure Cavernous Malformation. Together, they explore the power of advocacy, the importance of patient voices, and the urgent need for awareness and innovation in addressing cavernous malformations.

    Show More Show Less
    30 mins
  • Episode 63 ~ Brain Injury Association of America
    Feb 10 2026

    In this episode of the ABC Podcast, we're joined by Rick Willis, President and CEO of the Brain Injury Association of America, for a conversation with Katie Sale, Executive Director of the American Brain Coalition. Together, they discuss the power of collaboration across the brain injury and brain disease communities and highlight advocacy priorities to advance research, improve care, and elevate the voices of people affected by brain conditions.

    Show More Show Less
    33 mins
  • Episode 62 ~ The Association for Frontotemporal Degeneration
    Jan 26 2026

    American Brain Coalition Executive Director Katie Sale is joined by Meghan Buzby, Director of Advocacy & Volunteer Engagement at the Association for Frontotemporal Degeneration, and AFTD Advocates Mary and Colin Gibney, a person with lived experience and her care partner. This conversation highlights the power of advocacy, the importance of elevating patient and caregiver voices, and the strength of collaborating together.

    Show More Show Less
    42 mins
  • Episode 61 ~ Society for Women's Health Research
    Dec 10 2025

    In this episode, Katie Sale, Executive Director of the American Brain Coalition, speaks with Lindsay Miltenberger, Chief Advocacy Officer at the Society for Women's Health Research (SWHR). Lindsay provides an inside look at SWHR's mission, history, and its leadership in advancing women's health through science, policy, and education. This episode offers a comprehensive introduction to SWHR's impact and the initiatives shaping its advocacy today.

    Show More Show Less
    14 mins
  • Episode 60 ~ The Michael J. Fox Foundation for Parkinson's Research
    Nov 19 2025

    In our next episode, Katie Sale, ABC's Executive Director, sits down with Dan Feehan, Chief Policy and Government Affairs Officer at The Michael J. Fox Foundation for Parkinson's Research. Listen in as Dan shares insights into MJFF's advocacy efforts and highlights a key Texas referendum, which—since this recording—has successfully passed with over 68% of the vote, underscoring the strong public support for advancing neurological disease research. Tune in for a brief but impactful discussion on policy, progress, and the power of advocacy.

    Show More Show Less
    30 mins
  • Episode 59 ~ I AM ALS
    Oct 31 2025
    Tune in to hear Katie Sale, Executive Director of the American Brain Coalition, in conversation with Aditi Narayan Minkoff, Vice President of Community Support at I AM ALS, and Linda and Mike Buhr, passionate ALS advocates sharing their journey as a person living with ALS and her caregiver. This inspiring discussion highlights the power of advocacy, resilience, and community in the fight against ALS.
    Show More Show Less
    33 mins