Some needs are special, they’re not like the rest. They may leave a scar upon your chest.
You may look different, have a tube, a scar. But all these things are not who you are.
Even though she has a rare syndrome and some major health issues, Lucy is so much more than her “special needs”. Lucy wants you to know that in so many ways she is just like you - special indeed! Lucy’s story is a powerful voice for children with special needs, disabilities, and illnesses. Her story is also a valuable resource not only for parents and families with vulnerable children, but all people who need to learn the lessons of respect, understanding and compassion for those whose daily life is physically and emotionally challenging.
Lucy has Kabuki syndrome, a rare genetic disorder believed to affect one in 32,000 births worldwide.