• Fabry International Network: Connecting Patients and Advocates Worldwide

  • Oct 25 2023
  • Length: 9 mins
  • Podcast
Fabry International Network: Connecting Patients and Advocates Worldwide cover art

Fabry International Network: Connecting Patients and Advocates Worldwide

  • Summary

  • In this episode of OVIDcast, Rachel Gonzaga, Head of Patient Partnerships at OVID Health, interviews Mary Pavlou, President of the Fabry International Network as they discuss the organisation's accomplishments and the importance of transparent partnerships with the pharmaceutical industry.

    The Fabry International Network aims to raise awareness about Fabry disease, provide a platform for doctors and patient representatives to exchange experiences and best practices, and support the global Fabry community.

    (0:50) Living with Fabry Disease
    (2:46) Fabry International Network
    (5:40) Acquiring funding for neglected needs

    About the guest:
    Mary Pavlou is the President and Head of Patient Partnerships at Fabry International Network. She is a trained nurse and Fabry disease patient herself.

    Fabry International Network is an independent and vibrant network of Fabry patient associations whose purpose is to collaborate, communicate and promote best practice to support those affected by Fabry disease, connecting health professionals and allying with industry partners, with the mission to empower Fabry patients all over the world.


    Find out more about the Fabry International Network

    OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

    Find out more about OVID Health
    Follow OVID Health on LinkedIn

    Show More Show Less

What listeners say about Fabry International Network: Connecting Patients and Advocates Worldwide

Average Customer Ratings

Reviews - Please select the tabs below to change the source of reviews.

In the spirit of reconciliation, Audible acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respect to their elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.