Showing results by publisher "-emdashery books-" in People with Disabilities

In her most revealing memoir yet, Carrie is candid about the challenges of marriage, motherhood, and keeping one’s identity in the midst of raising a family. She gives the listener a glimpse into life with a diagnosed child. She shares their experience with puberty, social media, high school, and steps toward independent living. Composed as a series of powerful letters, her writing is gritty yet tender. In prose that is nearly poetic, Carrie makes you feel as though you are old friends, sitting down for a cup of coffee and a heartfelt conversation.

Author Eiren Caffall is the inheritor of a family legacy of two hundred years of genetic kidney disease and the mother of a child who may inherit that legacy. A literary memoir on loss, chronic illness, and generational healing, Caffall’s The Mourner’s Bestiary is also a meditation on grief and survival told through the stories of animals in two collapsing marine ecosystems—the Gulf of Maine and the Long Island Sound—and the lives of a family facing a life-threatening illness on their shores.

In this fascinating historical adventure, broadcaster and author Selina Mills takes us on a journey through the history of blindness in Western Culture to discover that blindness is not so dark after all. Inspired by her own experience of losing her sight as she forged a successful journalistic career, Life Unseen takes us through a personal and unsentimental historical quest through the lives, stories and achievements of blind people—as well as those sighted people who sought to patronize, demonize and fix them.

Nicolas Hamilton has been exceeding expectations since day one. Born with a form of cerebral palsy, Nicolas was told that he would never walk and would need a wheelchair for the rest of his life. Today he not only walks everywhere but he is the first disabled athlete to ever compete at the top level of British motorsport, The British Touring Car Championship, where he lines up on the grid alongside some of the world's best drivers. Now That I Have Your Attention follows Nicolas's remarkable journey and shares the valuable, tough, and often surprising lessons learned throughout his life.

John Cotter was thirty years old when he first began to notice a ringing in his ears. Soon the ringing became a roar inside his head. Next came partial deafness, then dizziness and vertigo that rendered him unable to walk, work, sleep, or even communicate. At a stage of life when he expected to be emerging fully into adulthood, teaching, and writing books, he found himself “crippled and dependent” and in search of care.

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

Bárbara Anderson narra con brutal franqueza el día a día de tener un hijo con discapacidad: los retos dentro y fuera de casa, las complicaciones de salud y de vida; los cambios de prioridades; el Everest de cada día al tener un hijo con - hasta ahora - un diagnóstico irreversible como es la parálisis cerebral infantil.

Anna grew up in a house that was loving, even if her mum was ‘a little eccentric’. They knew to keep things clean, to stay quiet, and to look the other way when things started to get ‘a bit much for your mum’. It’s only when her mother reaches her 70s and Anna has a family of her own, that the cracks really start to appear. More manic. More irrational. More detached from the world. And when her father, the man who has calmed and cajoled her mother through her entire life is diagnosed with cancer, the whole world turns upside down.

Eddie Ndopu was born in 1990 with Spinal Muscular Atrophy (SMA), a rare degenerative motor-neuron disease, and told that he wouldn't live beyond age five. Now, thirty-one years old and stronger than ever, he continues to celebrate each turn around the sun as an existential defiance of the odds. Gay, Black and a wheelchair user, he is now an eminent thought-leader and holds positions at two of the most important organizations on the planet. Sipping Dom Pérignon Through a Straw is Eddie's odds-obliterating story that illustrates what true leadership can look like.

The moving true story of a little girl with Asperger syndrome, controlled and abused by the one person she called her friend. Taylor had always struggled to make friends - she felt 'different'. Taylor never knew her father, and her mother wasn't around much. She just didn't understand people and was alone and scared most of the time. That was until, aged just 11, an older married man called Tom befriended her. She loved having someone who would talk to her, listen to her - a protector. But when he moved away a few months later, she was easy prey.

When she is 18, Hanneke Boot discovers that painting with her mouth is easier for her than painting with her hands. Born with a muscle disease, she’s experienced a host of challenges. But she’s found her calling in art and paints everything: views, landscapes, mills, and portraits. In Ain’t No Mountain High Enough, she shares her story. Boot narrates how being born with a physical disability guarantees you will run into obstacles for life.

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage?

In 1895, a specialist straps five-year-old Katharine Hathaway, then suffering from spinal tuberculosis, to a board with halters and pulleys in a failed attempt to prevent her from becoming a “hunchback” like the “little locksmith” who does odd jobs at her family’s home. Forced to endure her confinement for ten years, Katharine remains immobile until age fifteen, only to find that none of it has prevented her from developing a deformity of her own.

Who Wants Normal? lifts the lid off a subject that is too often shrouded in awkwardness and silence. It offers support, inspiration and a sense of solidarity to the many, many women with disabilities and long-term health issues – as well as opening the eyes of anyone wanting to better understand the many facets of living with a disability.

Living in the Belgian Congo with her husband in the 1960s, Fran’s mother became pregnant with a daughter. However, right after she gave birth in the hospital, she felt strange. Unbeknownst to anyone, another daughter was on the way, but before anybody responded, an hour had passed. Because of the delay, Fran was born with cerebral palsy. Growing up with her siblings in Africa, Fran always felt different. When everyone else was playing and having fun, she would watch and wish she could join in.

In the summer of 2019, journalist Melissa Blake penned an op-ed for CNN Opinion. A conservative pundit caught wind of it, mentioning Blake’s work in a YouTube video. What happened next is equal parts a searing view into society, how we collectively view and treat disabled people, and the making of an advocate. After a troll said that Blake should be banned from posting pictures of herself, she took to Twitter and defiantly posted three smiling selfies, all taken during a lovely vacation in the Big Apple. Now, in her manifesto, Beautiful People, Blake shares her truths about disability.

One fine April day, Mary Ann Kenny’s husband died suddenly while jogging near their family home. In the months that followed, Mary Ann – who had no history of mental illness – began suffering from depression, and then from a terrifying succession of physical and psychological symptoms, including the delusion that her young children had been harmed by her medications.

Told with shocking honesty and in unbelievable detail, Bipolar: A Gift of Thorns is a profoundly insightful memoir that shines a light on one woman’s courageous journey and the stigma of bipolar disorder.

Graham Hale Gardner died before turning 23 and never learned to walk or speak due to severe cerebral palsy complicated by epilepsy. Yet he left a legacy of love and compassion that deeply moved scores of people from widely different backgrounds. Graham’s story, written through the eyes of his father, speaks of the enormous legacy left by a boy who never spoke. A story that raises provocative questions about the “invisible lines of connection” that make us human.

Andrea struggles to mourn a man who is still alive as she witnesses her father decline into the depths of Alzheimer's. Denial and devastation color her life when she learns her father, Richard, a recently retired surgeon, is diagnosed with Alzheimer's at the age of 67. Her dream to grow closer to him is crushed as the reality of his disease is fully realized. Andrea, a mother of three young children, learns to balance motherhood with daughterhood as she grapples to accept her father's fate.