What Tourette’s Really Feels Like! cover art

What Tourette’s Really Feels Like!

What Tourette’s Really Feels Like!

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In this episode, Izzy looks at the reality of living with Tourette Syndrome, far beyond the stereotypes. Izzy's joined by her brother Magnus, whose daughter was diagnosed at age 7, and Katie Skinner from Tourette’s Action. Together, they discuss stigma, self-discovery, intrusive thoughts, ADHD, school support, and how we can build a more compassionate world for neurodivergent children. NHS – Where to Get Help for Self-Harm The NHS provides guidance on seeking help for self-harm, including advice on speaking to a GP and accessing support services - link here Chapters: 02:32 – The dream: Acceptance and inclusion for those with Tourette’s 04:03 – Alma’s early symptoms and family response 07:21 – What Tourette Syndrome actually is (Katie explains) 11:29 – Misconceptions: Tourette’s is more than swearing 16:54 – Why suppressing tics can be harmful 19:56 – The social toll: Being forced to advocate 22:07 – Acceptance, trauma and breaking cycles 25:00 – Pain, isolation and the complexity beneath the tics 27:29 – School struggles: Inclusion, ignorance and the “What If” board 35:00 – Music, exercise and finding peace 40:00 – How Tourette’s Action can help families today 42:29 – Magnus's ADHD discovery and mental health journey 52:15 – The care gap: Lack of NHS services and support Lets Talk Neurodivergent Kids is a Viral Tribe Entertainment Production Learn more about your ad choices. Visit podcastchoices.com/adchoices
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