To Test Or Not To Test? My Journey with Familial FTD
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To Test Or Not To Test? My Journey with Familial FTD
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About this listen
In this special bonus episode, Beth shares a very personal update about her family’s experience with genetic testing for FTD.
After finally receiving a long-awaited appointment with a geneticist, Beth reflects on the difficult questions this raises - whether to test or not, the emotional toll of waiting and what it means to live with the uncertainty of a possible genetic link to dementia.
With raw honesty, she talks through the pros and cons of knowing, the impact on mental health and the challenges of navigating a healthcare system that often feels painfully slow. This episode aims to offers a window into the complex decisions many families face when dementia may run in the family.
If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line.
To learn more about dementia research and how you can get involved, email infoline@alzheimersresearchuk.org
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