🎙️ Hosts: Erin Hubbard

🎤 Guest: Dr. Candice Wood

📅 Release Date: 6/9/2025

🔬 Topic: Postpartum Mental Health, Holistic Women’s Care, Motherhood & Burnout, Supporting Rare Disease Families

Episode Overview

In this episode, we sit down with Dr. Candice Wood, OB-GYN and founder of Women Made Well, a practice dedicated to supporting women through both physical and emotional transitions. Dr. Wood shares how her experiences as a physician and a mother inspired her to redefine what true healing looks like—one that embraces emotional wellbeing as deeply interconnected with physical health.

Key Takeaways

✔️How traditional OB-GYN care often falls short on mental health

✔️Why Dr. Wood founded Women Made Well

✔️The realities of postpartum anxiety and depression

✔️How social media exacerbates feelings of inadequacy in new mothers

✔️Practical strategies for navigating motherhood with a growth mindset

✔️The importance of community, even when living with rare diseases

✔️When and how medical intervention fits into emotional healing

Resources & Links

🌐 Learn more: thelostenzymeproject.org

Women Made Well Podcast: https://www.womanmadewell.com/woman-made-well-podcast

📢 Follow us on social media:

https://www.linkedin.com/company/the-lost-enzyme-project

https://www.instagram.com/thelostenzymeproject/

https://www.facebook.com/people/The-Lost-Enzyme-Project/61551541563692/

📩 Contact us:

Email us at admin@thelostenzymeproject.org

Producer: alex@thelostenzymeproject.org

📖Books Mentioned in the Episode (ISBN):

147213995X

1401971369

1622039076

Subscribe & Stay Connected

Stay informed by subscribing to These Kids Can’t Wait on Spotify, Apple Podcasts, Youtube or Amazon music. If you find this episode valuable, please leave a review to help raise awareness for rare disease research.

🎙️ Hosts: Erin Hubbard and Laurel Gregier

🎤 Guest: Dr. Paul Orchard

📅 Release Date: 5/12/2025

🔬 Topic: Bone Marrow Transplants, Gene Therapy, and the Future of Rare Disease Treatment

Episode Overview

In this episode of These Kids Can’t Wait, we are joined by Dr. Paul Orchard, Medical Director of the Inherited Metabolic and Storage Disease Transplantation Program at the University of Minnesota. Dr. Orchard brings decades of experience treating ultra-rare lysosomal disorders through stem cell transplantation and emerging gene therapies. Together with hosts Erin and Laurel, he walks us through the science, challenges, and hope behind bone marrow transplants for rare diseases, sharing insights from his career, reflections on patient care, and the future of life-saving treatment.

Key Takeaways

✔️ How bone marrow transplantation works for lysosomal storage disorders

✔️ The difference between cord blood and unrelated donor stem cells

✔️ The impact of early diagnosis and newborn screening

✔️ Limitations of enzyme replacement therapy and the promise of gene therapy

✔️ How families and advocates can help shape research and access to treatment

✔️ The emotional and medical realities of caring for ultra-rare patients

Resources & Links

🌐 Learn more: thelostenzymeproject.org

📢 Follow us on social media:

https://www.linkedin.com/feed/

https://www.instagram.com/thelostenzymeproject/

https://www.facebook.com/people/The-Lost-Enzyme-Project/61551541563692/

📩 Contact us:

Email us at admin@thelostenzymeproject.org

Producer: alex@thelostenzymeproject.org

Subscribe & Stay Connected

Stay informed by subscribing to These Kids Can’t Wait on Spotify, Apple Podcasts, Youtube or Amazon music. If you find this episode valuable, please leave a review to help raise awareness for rare disease research.

Episode 5: A Deep Dive into Rare Disease Research: Part 2

🎙️ Hosts: Erin Hubbard, Laurel Gregier

🎤 Guest: Dr. Martin

📅 Release Date: 4/21/2025

🔬 Topic: Advancing Research for Beta-Mannosidosis

Episode Overview

In Part 2 of our conversation with Dr. Angela Martin, we are continuing our conversation on rare disease research. Building on our earlier discussion of enzyme replacement therapy and the challenges of treating beta-mannosidosis, this episode explores how awareness, advocacy, and day-to-day lab work come together to drive progress.

Dr. Martin shares her passion for science, the emotional impact of working closely with families, and how conferences like WORLD play a pivotal role in forging critical partnerships. We also talk about the real-life stories and responsibilities behind the science, and what keeps researchers like Dr. Martin going in the face of uncertainty.

Key Takeaways

✔️ The importance of awareness and early diagnosis in rare disease treatment

✔️ How parent-led advocacy accelerates scientific progress

✔️ The daily grind—and joy—of conducting rare disease research

✔️ The pivotal role of conferences like WORLD in connecting research teams with potential biotech partners

✔️ How families and supporters can meaningfully contribute to ongoing research

Resources & Links

🌐 Learn more: thelostenzymeproject.org

📢 Follow us on social media:

https://www.linkedin.com/feed/

https://www.instagram.com/thelostenzymeproject/

https://www.facebook.com/people/The-Lost-Enzyme-Project/61551541563692/

📩 Contact us:

Email us at admin@thelostenzymeproject.org

Producer: alex@thelostenzymeproject.org

Subscribe & Stay Connected

Stay informed by subscribing to These Kids Can’t Wait on Spotify, Apple Podcasts, Youtube or Amazon music. If you find this episode valuable, please leave a review to help raise awareness for rare disease research.