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The Rare Disease Podcast

The Rare Disease Podcast

By: Medics For Rare Disease
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About this listen

3.5 million people in the UK live with a rare disease, so while each disease is individually rare, together rare diseases are common. Hear interviews with patients, clinicians, advocates, students and researchers focusing on rare disease in clinical medicine.


This podcast is brought to you by Medics for Rare Disease. Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them

© 2025 The Rare Disease Podcast
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Episodes
  • Not Just Words: Dr. Lisa Kaufman on Core Communication from the RSM
    Aug 14 2025

    Let us know what you think of this episode! We read every comment we receive.

    In this episode, we hear from the brilliant Dr. Lisa Kaufman, a Consultant Community Paediatrician, Associate Medical Director, and Communication Skills Trainer with Manchester Local Care Organisation (yes, she wears many hats!).

    Lisa shared her insights during her talk at our last unusual suspects event. The talk, 'Core Communication Skills' unpacks what it really means to listen well, how we can improve understanding across roles, and why simple communication habits can make all the difference in complex healthcare settings.

    Whether you're a medical student, clinician, or just passionate about improving patient care, this episode will leave you reflecting on how you connect, speak, and really hear the people you work with.

    Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

    M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

    M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare

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    35 mins
  • Ambassadors for a Reason: What Medics for Rare Disease Gets Right
    Aug 7 2025

    Let us know what you think of this episode! We read every comment we receive.

    For today's episode of the podcast Lucy speaks with Charlotte Chapman Hart, who has just completed her first year of her two year ambassador program with us.

    Charlotte also works as a project manager for an NHS trust and recently won the individual of the year award which recognises an individual who skills and actions have gone above and beyond to deliver excellence in their roles and, and really contribute meaningfully.

    Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

    M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

    M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare

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    1 hr and 7 mins
  • Is the NHS Listening to Its Young Patients?
    Jul 31 2025

    Let us know what you think of this episode! We read every comment we receive.

    For today's episode of the podcast, Lucy chats to Beth and Katie about a recent report that was published between the Youth Forum and the charity Barnardos called the Healthcare Transition Report 2024 to 2025.

    Beth and Katie are both part of the Youth forum and they tell Lucy what it's all about. The Youth Forum will soon be called the 'NHS Young Researchers.' and will consist of a group of young people aged 16 to 25 who work with NHS England to make sure that young voices are heard.

    Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

    M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

    M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare

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    48 mins
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