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The Rare Disease Podcast

The Rare Disease Podcast

By: Medics For Rare Disease
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About this listen

3.5 million people in the UK live with a rare disease, so while each disease is individually rare, together rare diseases are common. Hear interviews with patients, clinicians, advocates, students and researchers focusing on rare disease in clinical medicine.


This podcast is brought to you by Medics for Rare Disease. Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them

© 2025 The Rare Disease Podcast Hygiene & Healthy Living Physical Illness & Disease
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Episodes
  • Rare Futures: New projects and new voices with Emma Macleod

    Rare Futures: New projects and new voices with Emma Macleod
    May 15 2025

    Let us know what you think of this episode! We read every comment we receive.

    For this week's episode of the podcast, Lucy chats to our new trustee Emma Macleod all about her new role and the new project they are doing on behalf of the Department of Health and Social Care.

    Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

    M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

    M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare
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    43 mins
  • Light in the Silence: A review of the documentary 'It's not yet dark'

    Light in the Silence: A review of the documentary 'It's not yet dark'
    May 8 2025

    Let us know what you think of this episode! We read every comment we receive.

    For this week's episode of the podcast, Lucy has Emily back on to chat about the documentary 'It's Not Yet Dark'.

    'It's Not Yet Dark' is about the story of Simon Fitzmaurice, a young filmmaker who becomes completely paralysed from Motor Neuron disease but goes on to direct an award-winning feature film through the use of his eyes.

    The documentary is available to watch on Apple TV and Amazon Prime.

    Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

    M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

    M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare
    Show More Show Less
    40 mins
  • The GP with MG: Experiences as a Doctor with Myasthenia gravis with Dr Hannah Brew

    The GP with MG: Experiences as a Doctor with Myasthenia gravis with Dr Hannah Brew
    May 1 2025

    Let us know what you think of this episode! We read every comment we receive.

    For this week's episode of the podcast, Lucy speaks with Dr Hannah Brew who  is a Portfolio GP. Hannah speaks about all the many things she does that are hugely valuable to the NHS and health.

    Hannah also lives with Myasthenia gravis which is a chronic autoimmune disorder causing muscle weakness.

    Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

    M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

    M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare
    Show More Show Less
    53 mins

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