Dr. Jen Curtin is the Medical Director and Co-founder of RTHM Clinic, which specializes in complex chronic conditions via their clinic, telemedicine services, Intelligence platform, medication access program and other innovative services. She is also a former complex chronic illness patient herself.

Charlie McCone is a San Francisco based Long Covid patient advocate and non-profit professional with a background in marketing, communications, fundraising, and organizing. He has worked in the fields of HIV/AIDS, environmental and urban planning, and political campaigns. He is a member of the Patient-Led Research Collaborative and his Long Covid advocacy efforts have been featured in the Washington Post, The Atlantic, TIME and PBS. He has also written pieces featured in The Guardian, San Francisco Chronicle, and STAT News.

Together their teams have brought us the Long COVID Treatment Guide, which summarizes efficacy findings on 18 drugs, 5 supplements, 4 lifestyle approaches and 2 Medical procedures that were studied by the Harvard/Stanford TREATME project, patient surveys or other studies of treatments for Long COVID. The idea behind the Guide is to facilitate conversations between patients and practitioners about pototential Long COVID treatments, while we wait for larger, more robust studies to come. Dr. Curtin and Charlie also give updates on other exciting projects in the works at their organizations.

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Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Aryn was a serious college athlete when her POTS developed, and in this episode she shares how she has adapted and how despite having world class cardiology care for her symptoms, her diagnosis would have been missed if it hadn't been for another POTS patient recognizing her symptoms and then Aryn's specifically asking for a tilt table test.

If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Find out more about Standing Up to POTS! Check us out on our
Website: www.standinguptopots.org
Facebook: https://www.facebook.com/standinguptopots/
Instagram: https://www.instagram.com/standinguptopots/
Twitter: https://twitter.com/POTSActivist
Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Krysti Monaco helps families apply for disability benefits when their children are too disabled to work. In this episode she describes the available programs, application process, challenges, pitfalls, important deadlines and more. Krysti's law firm offers free consultations, daily YouTube videos, a free podcast and their website is here.

If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

Find out more about Standing Up to POTS! Check us out on our
Website: www.standinguptopots.org
Facebook: https://www.facebook.com/standinguptopots/
Instagram: https://www.instagram.com/standinguptopots/
Twitter: https://twitter.com/POTSActivist
Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.