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The POTScast

The POTScast

By: Standing Up to POTS Inc.
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About this listen

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.© 2021 Economics Hygiene & Healthy Living Management Management & Leadership Personal Development Personal Success Physical Illness & Disease
Episodes
  • POTS Diaries with Mackenzie from Massachusetts
    Aug 24 2025

    Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book. In this episode she describes her journey, including how a TikTok video helped her discover and manage her own POTS a couple years before the medical system diagnosed her.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

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    26 mins
  • MCAS symptoms “down there” with Dr. Tania Dempsey
    Aug 16 2025

    MCAS doesn't ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and mast cell stabilizers, as described in this research article. She also answers listener questions about hormones, hormone replacement, reactions to ultrasounds and ultrasound gel (this is the gel with fewer known allergens), and more.

    Dr. Dempsey's website is here: https://drtaniadempsey.com/

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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    50 mins
  • Bria from Wales, a professional patient rights advocate
    Aug 9 2025

    Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

    Show More Show Less
    46 mins
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Full of relatable stories to help you feel less alone, some great tips for managing symptoms, and overall hope for the future. Highly recommend this for any POTS patient or caregiver.

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