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The Grace, Grief and Grit Podcast

The Grace, Grief and Grit Podcast

By: Dee Daniels Media Podcast Network
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About this listen

 Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.Copyright 2023 All rights reserved.
Episodes
  • The Power of Support in Grieving: Betsy Kammerud on Helping Children Heal

    The Power of Support in Grieving: Betsy Kammerud on Helping Children Heal
    Aug 22 2025
    In this heartfelt episode of the Grace, Grief, and Grit podcast, producer Dee Daniels and co-host Anne Davis welcome Betsy Kammerud, a bereavement counselor from Hospice Savannah. The discussion centers around dealing with grief, especially for children who have lost a loved one. It begins with the poignant story of Hallie Grace, whose life was touched by a rare genetic disorder. The episode delves into the importance of creating safe spaces for expressing grief, the role of self-compassion, and the impact of continued bonds with deceased loved ones. Betsy offers practical advice and resources for helping children navigate their emotions, emphasizing the significance of group support and creative therapeutic activities. The conversation also highlights the value of self-care for parents and caregivers, ensuring they can offer the best support to grieving children. Join this insightful episode to learn more about the compassionate work being done to support grieving families and discover resources to assist those on their grief journey.

    Learn more about EB and the voices in this episode:

    Meet Betsy

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media: Podcast Production, High-Quality Editing, Content Coaching, and Show Promotion

    00:00 The Story of Hallie Grace

    00:56 Introduction to the Podcast

    01:08 Recap of the Ball Event

    02:59 Introducing Special Guest Betsy Kammerud

    05:04 Betsy's Journey into Hospice and Grief Work

    06:39 The Importance of Safe Spaces for Grieving Children

    10:22 Addressing Children's Grief and Guilt

    22:58 Therapeutic Activities for Grieving Children

    32:31 Supporting Grieving Children in School and Community

    37:11 Introduction to Grief in Literature

    37:43 Understanding Pre-Bereavement

    39:12 Hopes and Examples in Grief

    40:55 Book Recommendations for Grieving Children

    43:32 Resources for Grief Support

    51:48 The Importance of Self-Care and Self-Compassion

    01:00:38 Maintaining Connections with Loved Ones

    01:04:12 Conclusion and Final Thoughts
    Show More Show Less
    1 hr and 7 mins
  • Countdown to the 4th Annual Hallie Grace Memorial Butterfly Ball for EB

    Countdown to the 4th Annual Hallie Grace Memorial Butterfly Ball for EB
    May 22 2025
    In this heartfelt episode of the 'Grace, Grief, and Grit' podcast, producer Dee Daniels joins Anne and Joe Davis as they prepare for the fourth annual Hallie Grace Memorial Butterfly Ball for EB. Anne and Joe discuss their journey with Heroes for Hallie Grace, their nonprofit organization founded in memory of their daughter, Hallie Grace. --- They talk about the impactful initiatives they have launched, including the Butterfly Bundle Welcome Boxes, Wings of Care, and the Forever in Flight Memorial Boxes, emphasizing the personalized care and support provided to families affected by EB. The episode also highlights the upcoming ball's new venue at the Morris Center, the planning that goes into the event, and the excitement surrounding the community's participation and contributions. Listeners are encouraged to support the cause and experience the inspiring stories of families within the EB community. GRAB YOUR TICKETS TO THE BALL HERE

    We are officially a 501(c)(3) organization, and our Mission is three-fold: 1. Raise Awareness 2. Fund vital research and 3. Aid children with EB and their families in any way we can. We take in donations for the following purposes:

    Put on Fundraisers or other Events to further support our cause and raise awareness

    Partner with and donate to other well-known EB-related foundations and medical professionals/researchers working hard to support EB families and find treatments/an eventual cure

    Send free, customized "Butterfly Bundle" Welcome Boxes to support new EB families with bamboo clothing, special blankets, self-care and family-building items, books, and resources/support for all members of the family, including siblings

    Meeting the needs of individuals and their families still living with EB by filling any gaps with our "Wings of Care" initiative (examples include providing emotional support, finding resources, or providing much needed medical supplies, special clothing, equipment, etc. depending on what the individual or family needs in that moment)

    Support families that have lost a loved one to EB with free, specially curated "Forever in Flight" Memorial Boxes, resources in their area, and ongoing support as well

    Work with the EB Community as a whole to develop educational materials for doctors and families based on patient/family experiences to help make navigating EB at least somewhat easier for everyone involved and presenting these materials at conferences and other related events to reach as many people as possible.

    LEARN MORE AND HELP IN THE FIGHT
    Show More Show Less
    39 mins
  • Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson

    Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson
    Apr 2 2025

    In this poignant episode of the Grace, Grief, and Grit podcast, hosts Dee Daniels and Joe Davis engage in a heartfelt conversation with Krista Isaacson, a wife, mother of six, and author of 'Unbearable Burden.'

    ---

    Krista shares the devastating experience of losing her daughter Elora to a cancerous brain tumor and the emotional journey that followed. Through vivid storytelling, Krista recounts moments from Elora's life, the sudden discovery of her illness, and the difficult decision to remove her from life support. The discussion also touches on Krista's subsequent pregnancy, the healing process, and the impact of Elora's memory on her family. This episode is a profound exploration of love, loss, and the enduring strength of a grieving mother.

    Learn more about EB and the voices in this episode:

    MEET Krista Isaacson

    READ 'Unbearable Burden'

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media: Podcast Production, High-Quality Editing, Content Coaching, and Show Promotion
    Show More Show Less
    1 hr and 6 mins
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