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The Fine, But Not Fine Podcast

The Fine, But Not Fine Podcast

By: Fine But Not Fine
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About this listen

 Fine, But Not Fine is a podcast for anyone navigating the messy, frustrating, and often invisible challenges of rare diseases, chronic illness, and the healthcare system. Hosted by Kelly Paul, who has lived with Mycosis Fungoides (a rare form of Cutaneous T-Cell Lymphoma) since 2015, this podcast dives into the real-life struggles of managing an incurable condition while still trying to live a full, meaningful life. Resources: Cutaneous Lymphoma Foundation (https://www.clfoundation.org), International Society for Cutaneous Lymphoma (https://cutaneouslymphoma.org), Lymphoma Research Foundation (lymphoma.org), National Organization for Rare Diseases (rarediseases.org).Copyright 2025 All rights reserved. Social Sciences
Episodes
  • Managing Multiple Doctors - Ep. 25

    Managing Multiple Doctors - Ep. 25
    Nov 25 2025

    Managing multiple doctors with a rare disease or chronic illness is complicated, confusing, and honestly, exhausting. In this episode, I talk about what it’s really like to juggle doctors who don’t talk to each other — from conflicting advice and duplicate lab tests to the emotional toll of telling your story over and over again. I share the strategies that help me stay (somewhat) sane, like keeping my own records, maintaining a master medication list, and advocating out loud — even when it feels pushy.

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    17 mins
  • Redefining Holiday Joy with a Rare Disease - Ep. 24

    Redefining Holiday Joy with a Rare Disease - Ep. 24
    Nov 11 2025

    The holidays don’t have to be perfect to be joyful, especially when you're living with a rare disease or chronic illness. In this episode, I share how I’ve learned to let go of stress, overspending, and obligation — from going out for Thanksgiving dinner to skipping holiday travel — and focus instead on peace, connection, and real joy.
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    17 mins
  • Rare Disease Fatigue is Real - Ep. - 23

    Rare Disease Fatigue is Real - Ep. - 23
    Oct 28 2025

    In this episode, I open up about rare disease fatigue—physical exhaustion from treatment, the emotional weight of constant advocacy, and the endless admin grind of managing care. I share what triggers burnout, how I cope through energy management, creativity, and support, and why hitting a wall isn’t failure—it’s a signal to rest and rebuild.
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    12 mins
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