Happy FND Awareness day. To celebrate, we are honored to be speaking to one of the biggest FND advocates in Australia. Dr. Katherine Gill has returned to speak about FND and FND Awareness. Thankyou for talking on the FND Podcast it’s always amazing to hear your perspective and insights about FND as well as what services FND Australia support services does.

This Episodes notes:

If you would like to know more or access the FND Australian Support Services App:
Click here to to find out more about the APP:

Advocacy:

What is patient advocacy?

At the present moment QLD and NSW are the only states that have these programs. Other states in Australia you would need to speak with a Patient Advocate in that hospital.

In Queensland there is Ryans Rule

In NSW there is Reach which is proposed to be renamed recently Joes Rule

Music used in this Podcast is from Soundstripe : licensed for use

Lightspeed by Pala

Leap of Faith by Pala

Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.

FND AUSTRALIAN SUPPORT SERVICES :https://fndaus.org.au/fnd-symptoms/

A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

FND ACTION : https://www.fndaction.org.uk

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

FND GUIDE. :https://neurosymptoms.org/en/

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

FND DIMENSIONS: http://fnddimensions.org/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

The FND Podcast song of the month:

Never be alone by Shawn Mendes

https://youtu.be/N7VCLNBNJQs?si=0SEAetWzyoNAqylV

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness From Medium.com on the fnd portal

The Road to Functional Neurological Disorder by Gabriel Brownstein