In this episode, host Cara speaks directly to those who have lived with Hidradenitis Suppurativa (HS) for years — even decades. The ones who have weathered endless doctor visits, dismissive diagnoses, and a healthcare system that once didn’t understand their pain.

If you’ve ever felt forgotten, hopeless, or too tired to try again, this episode is for you. Kara honors the strength, endurance, and resilience of long-time HS warriors and reminds listeners that the world has changed — new treatments, new research, and a new generation of providers are here because of you.

Tune in for encouragement, validation, and practical tools to help you re-engage with care on your own terms, including:

• How to approach healthcare again after years of frustration
• Tools and documentation that can empower your next appointment
• New HS resources that didn’t exist before — from dermatologist finders to flare care kits
• Gentle reminders that hope isn’t naïve — it’s earned

You survived the hardest years. You made the road smoother for everyone who came after. Now, you deserve access to the care and compassion you helped create.

✨ Listen now, and explore resources, support, and community at hsconnect.org or hsconnect.org/healingspace

This podcast was made possible by UCB.