Here on the Ticker Tapes, since we launched back in 2021, we’ve been lucky enough to have had compelling conversations with many people impacted by heart disease. We’ve covered everything from coming through major heart surgery to caring for someone with a heart condition, and on this episode we’re re-visiting a story first published back in the spring of 2023.

Jody and Jamie Crook are tireless supporters of the work of BHF. They know only too well the emotional rollercoaster of living with an inherited heart condition, and the impact it has had on their family has been nothing short of monumental. Yet they bravely use their own experience to help others feel less alone and to highlight the need to fund research into such conditions.

Their story began in early August 2021, when their daughter Sienna – then just 14 months old – had a sudden cardiac arrest after returning home from an outing to the park with friends. She went on to be diagnosed with the inherited and currently incurable Brugada Syndrome, which Jody and Sienna’s brother Theo have since discovered they also have. In this episode Jody speaks bravely about the journey they have all been on. We hope you enjoy the chance to listen again.

As a charity, the British Heart Foundation depends on the generosity of donors to continue carrying out our lifesaving research. If you would like to donate, you can do so at bhf.org.uk/donatepod

If you've got any questions or concerns about your heart or circulatory health and want to talk with a cardiac nurse on the BHF’s Heart Helpline, go to our website at bhf.org.uk/hearthelpline and you'll find all the contact options.

And if you’ve got your own heart story, or have any thoughts on this episode, we'd love to hear from you at: thetickertapes@bhf.org.uk

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