Recovery, relapse and helping others: Kirk Lord from the National PANS/PANDAS Youth Alliance cover art

Recovery, relapse and helping others: Kirk Lord from the National PANS/PANDAS Youth Alliance

Recovery, relapse and helping others: Kirk Lord from the National PANS/PANDAS Youth Alliance

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"I want every single kid, every single teen, every single young adult, every single adult with PANS/PANDAS to realise what they are capable of because they are capable of so much more than their disorder gives them the notion of..."

One of my favourite episodes ever. So pleased to talk to Kirk Lord on the podcast. He first got PANDAS aged 4 or 5, recovered only to get it again in his late teens. This has not deterred him from living his best life. He talks of a growth mindset and gaining grit and resilience from battling the illness, and how "if you think PP is limiting, think again"

He set up the National PANS/PANDAS Youth Alliance to advocate for the illness and to unite young people who have experienced or are experiencing its impact.

And he practises what he preaches - already a stellar athlete, he dreams of competing in the Olympics.

Kind, articulate, and passionate, Kirk is a fantastic rolemodel for what surviving or living with PANS/PANDAS looks like.

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