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Rare Care Podcast

Rare Care Podcast

By: Rare Care Podcast
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 Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.Copyright © 2022 Haymarket Media, Inc. All Rights Reserved Hygiene & Healthy Living Science
Episodes
  • 200: An Interview With Dr. Barry Byrne, Director of the UF Powell Gene Therapy Center

    200: An Interview With Dr. Barry Byrne, Director of the UF Powell Gene Therapy Center
    Nov 24 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Barry Byrne, MD, PhD, an expert on Pompe disease and director of the University of Florida's Powell Gene Therapy Center.
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    12 mins
  • 199: An Interview With Rheumatologist Eric Matteson, Winner of the ACR's 2025 Presidential Gold Medal

    199: An Interview With Rheumatologist Eric Matteson, Winner of the ACR's 2025 Presidential Gold Medal
    Nov 19 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Eric Matteson, MD, of the Mayo Clinic and winner of the American College of Rheumatology's 2025 Presidential Gold Medal.
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    17 mins
  • 198: An Interview With New Mexico Patient Ambassador Karen Smoot of the Pulmonary Fibrosis Foundation

    198: An Interview With New Mexico Patient Ambassador Karen Smoot of the Pulmonary Fibrosis Foundation
    Nov 11 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Karen Smoot, a resident of New Mexico who has both idiopathic pulmonary fibrosis and pulmonary arterial hypertension. Karen is a patient ambassador for the Pulmonary Fibrosis Foundation.
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    16 mins
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