Patient Engagement and Standard of Care in Rare Disease Trials with Orit Rindner
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Patient Engagement and Standard of Care in Rare Disease Trials with Orit Rindner
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About this listen
In this episode of Trials with Maya Z, Maya and patient expert and advocate Orit Rindner discuss the intersection of patient needs and clinical trials, highlighting real-world challenges and insights from rare disease research:
- The impact of standard of care on patient willingness to join clinical trials
- Challenges in rare disease trials and patient recruitment
- The importance of aligning clinical trials with patient realities
Follow Maya Zlatanova: https://www.linkedin.com/in/mayazlatanova/
Follow Orit Rindner: https://www.linkedin.com/in/oritrindner/
- (00:00) - Chapter 1
- (00:00) - Introduction to Clinical Research and Patient Advocacy
- (02:28) - The Intersection of Patient Advocacy and Clinical Trials
- (04:49) - Patient Perspectives on Clinical Trials
- (06:47) - Engagement of Patients in Clinical Trial Design
- (10:11) - Isolated vs multidisciplinary approach
- (12:27) - The Role of Patient Advocates in Clinical Research
- (16:12) - Impact of Current Events on Clinical Research in Israel
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